- Participate in the CFIDS Association's Virtual Lobby Day. This helps to spread the word about CFS to your local media and your elected officials. There are 4 actions listed right now, and it only takes about 10 minutes to do them all (you can also choose to just do 1 or 2 of the actions). I do this every year, and it really works! Two years ago, both our local town newspaper and our city newspaper published the letters I sent through the CAA's Action center. I also received responses from my Senators and Representative, as well as a thank you note from a local representative who has a family member with CFS. It works and it's easy - try it! I'm headed there next.
- Tell your friends and family about CFS. I plan to post a link to this blog post on Facebook today. During the first few years after I was diagnosed, I e-mailed my family and friends to tell them more about CFS and how they could help. Several of my friends thanked me and said they wanted to know more. Here are some sources of information you can provide to others:
- About CFIDS by the CFIDS Association
- ME/CFS Facts by Phoenix Rising
- The CDC's information on CFS
- My own article, CFS: An Invisible Illness, published last fall on Lively Woman
You can also donate to CFS research without spending any extra money by using a shopping donation site or links like:
If you have CFS, take a few minutes to fill out the research questionnaire at the Whittemore-Peterson Institute - your answers can help them create a comprehensive database that will help future CFS research and will also allow you to be considered for their studies, if you want.
Do what you can to help and spread the word!