Today's quote isn't from a book; it's something that Jamie's pediatrician said to me on the phone yesterday that really touched me. I called her to fill her in on what's going on with his Lyme and co-infections. I've mentioned many times here how blessed we are to have this wonderful doctor as our boys' pediatrician - she's compassionate, intelligent, and always willing to learn something new (a rare trait in doctors, I've found). She talked with me for about 20 minutes, asking all kinds of questions about what tests the Lyme doctor ran, how the results turned out, and how he plans to approach treatment. When I told her he thought the lines on Jamie's back were definitely from bartonella, she sighed in frustration. "I've seen those same lines on the backs of a half dozen teen boys this summer," she said, "but these are healthy kids with no other symptoms!" She's understandably frustrated by the uncertainties inherent in diagnosing Lyme and co-infections. Finally, at the end of our conversation, she said to me:
I want you to know that it's because of your intelligence and all your hard work in researching this stuff that you and your family are doing as well as you are with such serious illnesses. You're doing a great job.
Tears came to my eyes. All these years (she's been the boys' doctor since they were born), I wondered if she was just patiently putting up with me but thinking I was a pest, constantly bringing her new information and questioning everything. Her words really touched me deeply and made all the time, effort, and stress of the past few months (years?) seem worth it.
In addition, she asked me to write a very brief summary of why we suspected Lyme and bartonella in Jamie and how the tests turned out so that she can pass that information onto the pediatric doctors who are supposed to be our local Lyme experts. When she talked to each of them about Jamie's case a couple months ago, they'd never heard of the pain in the soles of feet that Jamie was having - but our Lyme doctor says it's a very common Lyme symptom. That's just how she is - constantly trying to improve her own knowledge and that of other doctors.
As for Jamie, he's pretty wiped out today, but I'm not sure it's a reaction to the Lyme medication yet. He and Craig have been running wild all week - sleepovers, swimming, games, and, for the last two nights, flashlight tag until 10 pm!! I love to see them having so much fun and acting like normal kids.
Hope you're all enjoying the weekend!