Friday, May 06, 2011

Raising Awareness of ME/CFS Through Music

I thought Friday afternoon would be a good time to tell you about a wonderful acoustic duo who are helping to build awareness of ME/CFS through their music.

The group is called Cinder Bridge and is made up of Susan Wenger and Ron Amistadi.  You can check our their blog - and their music - at their Cinder Bridge blog (several sample songs can be heard in the upper right corner of the blog).

So, what do they have to do with ME/CFS?  Someone close to them has ME/CFS, and one of their songs, "Everybody Knows About Me", was inspired by him.  The song is intended to emphasize how serious and debilitating ME/CFS is and to help dispel common misconceptions about it.  Here's a really awesome YouTube video someone put together using their song.

Their blog even includes an FAQ page that talks about their efforts to build awareness of ME/CFS, plus a link to this great Fact Sheet they created about ME/CFS to educate their listeners.  When they play "Everybody Knows About Me" at a public appearance, they explain what ME/CFS is and why they wrote the song.

As you can tell, I've been very impressed by their efforts...and I like their music, too!  If you're a fan, too, you can purchase their first CD here (though it doesn't include "Everybody Knows About Me" - they're currently at work on that one).  I hope you enjoy exploring their music as much as I have!


  1. This is such a sad song but very real ~ and educational...Saw sweet Laurel in the video. Thanks for sharing this Sue. Hope Jamie's appt goes well.

  2. Sue,
    Thanks so much for sharing this today! I couldn't get the music to play, but went to the U-tube video and it was incredible!!!

    What a wonderful thing for them to do!

    Hope life is returning to "normal" for you all there.


  3. Love the vid and music.

  4. Oh how awesome that they are doing this! Am going on to youtube right now, thanks Sue!