Friday, May 06, 2011

Raising Awareness of ME/CFS Through Music

I thought Friday afternoon would be a good time to tell you about a wonderful acoustic duo who are helping to build awareness of ME/CFS through their music.

The group is called Cinder Bridge and is made up of Susan Wenger and Ron Amistadi.  You can check our their blog - and their music - at their Cinder Bridge blog (several sample songs can be heard in the upper right corner of the blog).

So, what do they have to do with ME/CFS?  Someone close to them has ME/CFS, and one of their songs, "Everybody Knows About Me", was inspired by him.  The song is intended to emphasize how serious and debilitating ME/CFS is and to help dispel common misconceptions about it.  Here's a really awesome YouTube video someone put together using their song.

Their blog even includes an FAQ page that talks about their efforts to build awareness of ME/CFS, plus a link to this great Fact Sheet they created about ME/CFS to educate their listeners.  When they play "Everybody Knows About Me" at a public appearance, they explain what ME/CFS is and why they wrote the song.

As you can tell, I've been very impressed by their efforts...and I like their music, too!  If you're a fan, too, you can purchase their first CD here (though it doesn't include "Everybody Knows About Me" - they're currently at work on that one).  I hope you enjoy exploring their music as much as I have!

4 comments:

  1. This is such a sad song but very real ~ and educational...Saw sweet Laurel in the video. Thanks for sharing this Sue. Hope Jamie's appt goes well.

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  2. Sue,
    Thanks so much for sharing this today! I couldn't get the music to play, but went to the U-tube video and it was incredible!!!

    What a wonderful thing for them to do!

    Hope life is returning to "normal" for you all there.

    Blessings,
    Elaine

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  3. Love the vid and music.

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  4. Oh how awesome that they are doing this! Am going on to youtube right now, thanks Sue!

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