Thursday, February 23, 2012
Groundbreaking New Research Model for ME/CFS
I've been really exhausted all week but also really busy, so today I am feeling pretty badly crashed...and both of my kids are home sick, too. So, I don't have the time or energy for much blog writing today, but I wanted to share this great new announcement from the CFIDS Association of America (CAA).
They are starting a brand-new research initiative called "research institute without walls." Basically, they are coordinating (and funding) ME/CFS research from top scientists and doctors, located at top research facilities, and making use of the CAA's Solve CFS BioBank. The program is focused on finding effective treatment options for those with ME/CFS, a refreshingly practical and unusual approach in this field! Each of the projects will delve into its own aspect of CFS (cognitive dysfunction, OI, exercise intolerance, etc.), but the researchers will also work together, coordinated by CAA's Scientific Director, Suzanne Vernon, and share information. You can read all about the new approach and the individual studies approved so far at Reserach1st.
I think this is wonderful news for all of us patients! The Wall Street Journal even covered this breakthrough on their Health Blog this morning. Apparently, in addition to the usual sources of research funding (we contributed to this project!), Laura Hillendbrand is donating $250,000, bringing the total funding to $2 million. How about that for some good news for a change?
P.S. Want to help? Read about the Catalyst Fund which is helping to fund this research and contribute, if you are able to. You can also help move this research along by participating in the SolveCFS BioBank. I have applications for Jamie and I sitting here...I really need to find the time to get to these...