I know I’ve been promising this post for a long time (and it will probably be at least two posts), but I’ve been trying to gather some information to pass along and also wanted to wait until we got through our latest (hopefully last!) 504 meeting for Jamie, our 17-year old son. We finally accomplished that two weeks ago, and I sincerely hope that by sharing our experiences, we can possibly prevent some of you from going through the same sort of challenges and difficulties we have faced over the last 8 years.
- CFIDS Association Youth section/Education resources
- Your local Parent Information Center (PIC) – search for “parent information center” and your state
- The Parental Advocate website
- Your state Department of Education website
Please share your comments here with other parents, based on your own experiences (and certainly let me know if I've gotten anything wrong here!)
NOTE: If you are a parent with a child/teen/young adult with ME/CFS (or related illnesses), you might be interested in a Facebook group for parents of sick kids that I started.