|Craig recuperating with his new little friend, a pet hamster|
|Our newest family member|
I did (finally) write my testimony for next week's CFSAC meeting. I don't know yet if I got a speaking slot, but at least my written testimony will be part of the record. This time, I focused on the need for urgent education of medical and educational personnel and illustrated that with some horror stories from our online parents' group. I am sure each one of you has your own horror stories, too; I am hoping this will have an impact on the committee members. I'll post my testimony separately.
OK, nap time after I finish the lunch dishes.
NOTE: If you or a loved one with ME/CFS needs surgery, be sure to share these guidelines with your surgeon and anesthesiologist beforehand. The staff at the orthopedic center Craig went to was great and very understanding about the issues with OI.