tag:blogger.com,1999:blog-22576999.post1261577456751497893..comments2024-03-27T14:05:22.815-04:00Comments on Live With ME/CFS: Update on CFSAC MeetingSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-22576999.post-90565280800565980002010-10-14T20:52:11.746-04:002010-10-14T20:52:11.746-04:00I didn't watch this year because of MD appts a...I didn't watch this year because of MD appts and crashing. I heard they proposed a name change?<br /><br />Did you hear that?<br /><br />Thanks for the report on the first day.<br /><br />I hope you get lots of chances to rest while flying solo!me/cfs warriorhttps://www.blogger.com/profile/01299057722862223585noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-90398371996714940892010-10-14T16:40:50.699-04:002010-10-14T16:40:50.699-04:00Great that you were able to watch... that would in...Great that you were able to watch... that would indeed be very emotional, especially hearing a close friend! <br /><br />For me it's too much stimulus to follow the politics much. I think people are really brave to be publicly speaking about their illness and to be at such a high intensity event. I get dizzy thinking about it, really! So thanks for the info second hand.<br /><br />Jo, I also feel a great deal of anger, which is not natural to my personality. Anger takes too much of my energy so I tend to wall myself off from contemporary events as best I can.<br /><br />Serious accolades to all those who participated or even watched!<br /><br />D.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-25698806131767443852010-10-14T08:14:56.717-04:002010-10-14T08:14:56.717-04:00Thanks, Jo!Thanks, Jo!Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-67064377777572309832010-10-14T05:00:00.984-04:002010-10-14T05:00:00.984-04:00I listened in rather than saw, but it was interest...I listened in rather than saw, but it was interesting.<br /><br />CFS/ME is a disabling illness, as much as MS is. Attitudes have still to change to regard it as such and these attitudes inform everything from research to find a cure to providing affected people with enough money to live on. <br /><br />I'm not surprised you responded emotionally. My own emotional response is currently extreme anger at not being believed. The work you do here on your blog helps change those attitudes. Thanks :-)Dusty Bogwranglerhttps://www.blogger.com/profile/14378437798741434260noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-74964708638070113792010-10-13T15:54:42.069-04:002010-10-13T15:54:42.069-04:00Thanks so much for the info. I've been too bus...Thanks so much for the info. I've been too busy to watch and will look forward to your summary and comments. Try not to overdo while flying solo!!Anonymousnoreply@blogger.com