tag:blogger.com,1999:blog-22576999.post2754922444045928463..comments2024-03-16T10:39:00.522-04:00Comments on Live With ME/CFS: Parenting a Child with ME/CFSSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-22576999.post-86271191372831457412011-10-04T21:22:30.132-04:002011-10-04T21:22:30.132-04:00Sue, I'm so very sorry. Boy, do I remember th...Sue, I'm so very sorry. Boy, do I remember those times. Poor Jamie. I really don't have any words. Just know you are all in my thoughts and prayers.Lori Phttps://www.blogger.com/profile/01808703279193470654noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-73568874217010003702011-10-02T17:58:50.140-04:002011-10-02T17:58:50.140-04:00Sorry to hear/read this Sue. This is so difficult ...Sorry to hear/read this Sue. This is so difficult on the whole family. Experiencing some mixed feelings as my oldest seems to be making a slow recovery - post Valcyte, nutritional supplements, PT, pain meds, etc etc after two years - Yeah!!! <br />Unfortunately, my youngest is experiencing some health problems post last years mono. He has been on Florinef since July and had seen some improvement, but now sick again and just missed a week of school plus. Uggh...I'm hoping for more research and help to find help for these kids and adults stricken with this awful illness. <br />TwoboysmomAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-11013275554761352852011-10-01T14:27:57.983-04:002011-10-01T14:27:57.983-04:00Oh Sue, I'm so sorry. I can't imagine wha...Oh Sue, I'm so sorry. I can't imagine what its like to see your child struggle daily. Please know that I care and will be praying extra hard for you all. <br /><br />Sending hope and hugs to you all.<br /><br />ElaineElainehttps://www.blogger.com/profile/06922200217770835483noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-64929187310296924332011-09-28T11:23:25.090-04:002011-09-28T11:23:25.090-04:00Sue, I'm so sorry! Sending love, healing &...Sue, I'm so sorry! Sending love, healing & support to all of you!Bloomin'Chick Johttps://www.blogger.com/profile/08655635228669237336noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-44594269308719478212011-09-28T10:12:45.151-04:002011-09-28T10:12:45.151-04:00((hugs)))
At times I don't understand it all &...((hugs)))<br />At times I don't understand it all & I'm watching dd go through it, It's such an up & down illness. We take each day as it is & enjoy the good days.<br />The hard part at moment is watching all her friends go off to uni - planning their next journey in life & hers is soo tightly controlled by CFS/ME.<br /><br />I sure hope someone can find a cure<br /><br /> Love to Jamie<br /><br />Love LeanneLeannehttps://www.blogger.com/profile/00420783423172718178noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-48137423780914941892011-09-27T23:24:46.125-04:002011-09-27T23:24:46.125-04:00I am so sorry you all have to go through this. It...I am so sorry you all have to go through this. It is awful living with this but I can't even imagine having to watch one of my kids live with it. Just give him all the love and comfort you can....what can replace a mothers love and hugs??? NOTHING....so love and hug.<br />Will say an extra prayer for you all tonight...Peggyhttps://www.blogger.com/profile/08754433587566836637noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-3894126599299436302011-09-27T20:07:52.297-04:002011-09-27T20:07:52.297-04:00Big hugBig hugAnniehttp://www.parentingcfs.comnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-9834308211400838102011-09-27T18:10:27.755-04:002011-09-27T18:10:27.755-04:00Sue, I am so sorry to hear how much Jamie is strug...Sue, I am so sorry to hear how much Jamie is struggling. I don't have kids but can only imagine the pain and hurt you must be feeling. I wish there was some magic words that I could speak that would make it all better. The only thing I can do is for you to know that I am hear for you and that I am praying for you and your family.Keenahttps://www.blogger.com/profile/04872631822031248926noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-46447805430836190612011-09-27T17:05:55.572-04:002011-09-27T17:05:55.572-04:00So sorry for you guys and Jamie. And I agree it i...So sorry for you guys and Jamie. And I agree it is a tough thing sharing the pain of this illness. I find, too, that a lot of people are just uncomfortable with it. The only want to hear when things are improved or that things are fine.<br /><br />It actually brought tears to my eyes reading this...despite the fact that I only "know" you through the cyber world, my heart goes out to you and Jamie...and of course having the same illness, I can empathize in a real way being in a crash/relapse myself at present. I'm sending my thoughts your way right now hoping that things improve soon.upnorthhttps://www.blogger.com/profile/04283010424792189579noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-54951521171526016442011-09-27T16:27:56.974-04:002011-09-27T16:27:56.974-04:00Oh, Sue. It is heartbreaking to hear how Jamie is...Oh, Sue. It is heartbreaking to hear how Jamie is struggling and how much he is missing as a senior right now. It must be so difficult for you to watch. Please know that you are all in our prayers in in Iowa. These diseases are so horrid....taking so much from us, but when you are young? It is so so unfair. <br />Sending cyber hugs across the country to you.Reneehttps://www.blogger.com/profile/07089685282700680525noreply@blogger.com