tag:blogger.com,1999:blog-22576999.post2914861820624593965..comments2024-03-28T17:38:39.157-04:00Comments on Live With ME/CFS: Summary of IACFS MeetingSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-22576999.post-66941437004186681232011-12-08T04:48:02.348-05:002011-12-08T04:48:02.348-05:00Thanks Sue, I had read most or all of this before ...Thanks Sue, I had read most or all of this before on one of the association sites but picked up some new things. Firstly, a primer - yay. Let's hope a) it's internationally distributed and b) includes a specific section for adolescents. Secondly, 'the balloon like leggings' described as used with heart patients (EECP I think it was ) may fit with the whole leg massage therapy we've discussed... Interesting.Anniehttps://www.blogger.com/profile/09677903765123497474noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-47523207108767835422011-12-07T18:36:35.628-05:002011-12-07T18:36:35.628-05:00Sue, I'm so glad you posted this. The referen...Sue, I'm so glad you posted this. The reference to a 10 minute read finally got me to look at it. I linked to it on my Family FaceBook page. There are about 25 people in my generation of my Dad's family. 5 of us have dealt with CFS and/or fibro.KipperCathttps://www.blogger.com/profile/12011060884920219554noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-4827449677191241742011-12-07T18:35:55.334-05:002011-12-07T18:35:55.334-05:00Sue,
I'm new to your blog. My wife and I live...Sue,<br />I'm new to your blog. My wife and I live in San Diego. I'm 62 y.o. and I've been dealing with CFS for 10 years. I find all my symptons in what others say on your blog. Some of them describe 'our' problems very eloquently. Thanks to you all. I enjoyed the writing you guided us to, 'IACFS'. This is the very first-drum roll-site I've ever reached out to. I'm sure I'll be back often. I have the time if little energy! <br />Thanks<br />Bob DeeringBobbyDhttps://www.blogger.com/profile/02544804874072519102noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-130362841831653142011-12-07T16:20:24.364-05:002011-12-07T16:20:24.364-05:00Thanks for posting this Sue. xThanks for posting this Sue. xLee Leehttps://www.blogger.com/profile/02614823402670740413noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-68368398091325373742011-12-07T15:36:02.323-05:002011-12-07T15:36:02.323-05:00Inquiry, please contact me.Inquiry, please contact me.Miladyhttps://www.blogger.com/profile/01158798645482569359noreply@blogger.com