tag:blogger.com,1999:blog-22576999.post3228396961899257504..comments2024-03-16T10:39:00.522-04:00Comments on Live With ME/CFS: Science Requests Retraction of Original XMRV PaperSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-22576999.post-8963032323421845442011-06-10T13:11:32.351-04:002011-06-10T13:11:32.351-04:00Thanks for your thoughtful words, Sue. The negati...Thanks for your thoughtful words, Sue. The negative announcement from Science does set us back. However there were some positive abstracts posted from the 15th annual International Retrovirology conference. I hope that helps put us back on track to more research!Maxinenoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-21101017034528727962011-06-05T13:55:21.490-04:002011-06-05T13:55:21.490-04:00I've been following all this, too. It's f...I've been following all this, too. It's frustrating to say the least. There are still so many questions left unanswered that can't be explained by the contamination theory. I hope they'll step back and let the real science play out.Shellihttps://www.blogger.com/profile/03068094486297918345noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-26984241439098623722011-06-03T19:56:45.946-04:002011-06-03T19:56:45.946-04:00Wow, Sue, I haven't heard about this - am goin...Wow, Sue, I haven't heard about this - am going to check out the summary right now!parenting ad absurdumhttps://www.blogger.com/profile/07406061447562420937noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-53841903328457911652011-06-02T16:14:11.463-04:002011-06-02T16:14:11.463-04:00Well said! Science was embarrassed from the beginn...Well said! Science was embarrassed from the beginning to publish anything about CFS. Now they want to wash their hands of it before the research has had time to play out.Alisonhttps://www.blogger.com/profile/07064893477629124444noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-40084560030285133892011-06-02T16:01:42.382-04:002011-06-02T16:01:42.382-04:00Thanks for sharing Sue. I don't follow much, ...Thanks for sharing Sue. I don't follow much, so I appreciate the news you bring. <br /><br />Praying all will come to light soon and we will be treated with the same level of care that others are. <br /><br />Blessings,<br />ElaineElainehttps://www.blogger.com/profile/06922200217770835483noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-34392833890256897972011-06-02T14:45:40.034-04:002011-06-02T14:45:40.034-04:00Toni -
That's almost funny - how on earth co...Toni - <br /><br />That's almost funny - how on earth could anyone read anything negative in your lovely approach to living with chronic illness, when it is helping to bring peace and comfort to so many people around the world? What choice do we have but to accept where we are today? To do otherwise only makes us sicker.<br /><br />Anyway, I share your optimistic view that we (and science) will prevail! It is just discouraging to be taking a step backward.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-3526383808015255212011-06-02T13:55:03.914-04:002011-06-02T13:55:03.914-04:00I missed this story in my online news browsing tod...I missed this story in my online news browsing today. This is such a disappointment. Like you, I'm not a conspiracy theorist (what one person who's angry at me called "a CFS denier" -- he says that my approach of accepting how you are today and moving on from there just plays into the hands of the "CFS deniers"). BUT, this move by Science makes me too wonder if someone isn't out to get us. At least we've got doctors at all the major medical centers fighting for us (from Harvard to Stanford). We will prevail!Tonihttps://www.blogger.com/profile/05729837575450453607noreply@blogger.com