tag:blogger.com,1999:blog-22576999.post3467829544204586298..comments2024-03-28T17:38:39.157-04:00Comments on Live With ME/CFS: A Double Lyme UpdateSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-22576999.post-73862438911347978782015-02-04T09:03:18.684-05:002015-02-04T09:03:18.684-05:00Hi, Jo -
Just want to be sure we are talking abo...Hi, Jo - <br /><br />Just want to be sure we are talking about the same ADP. The one I mention in this blog post is a brand name for emulsified oil of oregano. Oregano is an herb with antibacterial, antiviral, and antifungal properties, so our Lyme doctor recommends it for Lyme.<br /><br />ADP is also an abbreviation for a component in the energy cycle that occurs in our mitochondria in our cells.<br /><br />The oregano we take is for treating my son's Lyme and yeast overgrowth in both of us. There's no real program - it's just one of many supplements we take daily. Neither of us had a herx reaction from the herb.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-61896137117014166472015-02-01T23:39:23.010-05:002015-02-01T23:39:23.010-05:00Hi Sue,
I have just stumbled across your blog (a ...Hi Sue,<br /><br />I have just stumbled across your blog (a fantastic resource by the way!) and wondered how you went on your ADP programme? I am just about to start on ADP for CFS and am curious to get some feedback. <br />Also- did you suffer with a herd reaction to this supplement?<br /><br />Many Thanks, JoAnonymoushttps://www.blogger.com/profile/00133664357896424434noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-52580654386362721092010-07-15T06:23:58.783-04:002010-07-15T06:23:58.783-04:00Sue...this is my 1st time reading this blog of you...Sue...this is my 1st time reading this blog of yours. You and your poor family...gezz.<br /><br />I was diagnosed with Lyme's Disease about 4 years ago, after tick bites that year and the previous year. I was very sick after the first sick bite, but after heavy doses of antib's, I have been pretty much symptom free now, except for some joint pain.<br /><br />I hope all of you can find some treatment to work :)(Diane) Bibliophile By the Seahttps://www.blogger.com/profile/10519875632878992728noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-11686311143493772372010-07-11T00:23:42.847-04:002010-07-11T00:23:42.847-04:00I know this is all good news as it means moving fo...I know this is all good news as it means moving forward toward getting well, but I'm sad Jamie (and you) are having to go through it at all. Tell Jamie he will be in my thoughts and prayers for a quick herbx (?) process.<br /><br />You always do such a good job sorting through all the details and finding the best way to navigate through it. I am really hoping that this time is it for you!Dominiquehttp://www.4wallsandaview.com/noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-926854262369887382010-07-09T12:10:42.043-04:002010-07-09T12:10:42.043-04:00Hi Sue, Just wanted to drop in and say hi! Just re...Hi Sue, Just wanted to drop in and say hi! Just read your last post, gosh lots to digest for you and the boys there.<br /><br />Sounds like you're a foodie and bookworm like me so really looking forward to reading your older posts xThe Happy Pandahttps://www.blogger.com/profile/13546199933163325712noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-74306630776684349772010-07-09T11:03:56.105-04:002010-07-09T11:03:56.105-04:00Sue, I'm glad Jamie's getting the treatmen...Sue, I'm glad Jamie's getting the treatment he needs and, while being sick in the summer sucks, it's better than the school year, I guess :) I hate that he has to go through this so young! But maybe being young will help his recovery.<br /><br />I know going off the antbx is scary -- I hate herxing more than anybody I think! -- but it really is amazing how much you can learn by going off them. When my doc first had me pulse my meds, I was really nervous, but we found out that things were better than before & not as good as thought. Thus time for a new med so push through the plateau. I hope you find out something useful, too! And before it's long enough to cause a month-long herx when/if you start back up!<br /><br />Adam is pulling me out of my chair so ....Pamelahttps://www.blogger.com/profile/05578825920314020836noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-58622546842663296682010-07-09T09:27:21.103-04:002010-07-09T09:27:21.103-04:00Wow! A lot to take in. This doc sounds great, real...Wow! A lot to take in. This doc sounds great, really positive. I wish you all the best with it . . . .Dusty Bogwranglerhttps://www.blogger.com/profile/14378437798741434260noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-33108510945330598842010-07-09T01:40:28.249-04:002010-07-09T01:40:28.249-04:00I deeply regret that this happens friend, maybe it...I deeply regret that this happens friend, maybe it needs most is support from a friend, so I say that in these difficult times we are all here with you, good luck ...DiseƱo de paginas webhttp://www.dominiocolectivo.comnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-22474200731349493382010-07-08T20:40:03.955-04:002010-07-08T20:40:03.955-04:00Wow, Sue. You've got a lot to "digest&quo...Wow, Sue. You've got a lot to "digest" from that doctor's visit. A lot of it is positive though. For one thing, addressing the lyme and related infections may well lead to a reduction or even recovery from CFS for Jamie since he's still young. <br /><br />As for your situation, your doctor seems confident that you'll do okay off the doxy. He's been very careful about leaving you on it longer because of the CFS. And if the symptoms do come back, now you've got feedback from Renee indicating that you'll be "pulsing," -- bring out more bacteria each time you go off and then back on.<br /><br />I think you're right to not do everything at once to your body -- a kind of pacing (a word we know so well!).Tonihttps://www.blogger.com/profile/05729837575450453607noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-87819287782834987312010-07-08T19:11:13.567-04:002010-07-08T19:11:13.567-04:00Thank you, thank you, Renee, once again, for your ...Thank you, thank you, Renee, once again, for your wonderful advice! It's all much appreciated. I hadn't heard that pulsing abx helps get rid of Lyme - I thought I had set myself back each time. That makes me feel better about trying again!<br /><br />Jamie already takes probiotic - but just once a day. Now we'll go up to 4 a day (I take 4 a day while on doxy and haven't had any problems with yeast). Our doctor is in love with a newish herbal product called ADP - it's emulsified oregano (I know, weird!), and it's a strong anti-fungal, anti-viral, and anti-biotic. he wants me to take it too to help with Lyme. I tried straight oregano supplements before for herxing but they upset my stomach - he says this won't. He says it's much gentler option than prescription anti-fungals and works within a month for most of his patients to get rid of yeast. E-mail me from my profile page if you want details on how to order it.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-18190530306947915872010-07-08T17:41:57.598-04:002010-07-08T17:41:57.598-04:00Hi Sue
I am so sorry Jamie is dealing with the Lym...Hi Sue<br />I am so sorry Jamie is dealing with the Lyme, Bart and Babs....three nasties that are too smart for our own good! So glad you have a good doctor you can rely on to help you through it.... Going off Doxy is scary, I know. i felt so good off of it and during that time ~ for me~ the lyme was slowly activating again....so that when i went back on my neuropathy went out of control...just like you said. It is challenging, but there is also the knowledge that Burrascano shares ~ that pulsing like that actually brings Lyme bacteria out of hiding so you kill more each time. It is just so hard to go through. Glad that you can get those supplements.....Detoxing is when you use support methods like castor oil packs for the liver, sauna for the skin, supplements, etc. that help remove the dead bacteria toxins from your body. It does not come out on its own from what I have been told. I take Phytostan for the yeast, and also at least 5 probiotics a day....especially before bed. As you know, this journey is not easy, but it is possible!<br />You will continue to be in my prayers. <br />PS I good book for ideas on supplements, detoxing, etc. is Insights For Treating Lyme Disease by Connie Strasheim.Reneehttps://www.blogger.com/profile/07089685282700680525noreply@blogger.com