tag:blogger.com,1999:blog-22576999.post3966868824192638149..comments2024-03-16T10:39:00.522-04:00Comments on Live With ME/CFS: It's BackSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-22576999.post-81454365582982023492009-03-06T21:11:00.000-05:002009-03-06T21:11:00.000-05:00Did I tell you that I just found out that I had Ly...Did I tell you that I just found out that I had Lyme? Untreated for a long time. I hope that you can get the help you need to feel a lot better soon. I'm getting on a protocol now to fight it and that's not fun, either.<BR/><BR/>Here's something you can do. Are you on Goodreads? If not get over there and friend me, 'kay? :)Sherryhttps://www.blogger.com/profile/11034488498196936495noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-36733743846102439802009-03-06T15:00:00.000-05:002009-03-06T15:00:00.000-05:00Oh, Sue, I'm so sorry that the Lyme is back, and t...Oh, Sue, I'm so sorry that the Lyme is back, and that you're going through this - especially when you have a trip planned! Take care of yourself! <BR/><BR/>We'll be thinking about you. Again, I'm sorry.Laura (aka Mom)https://www.blogger.com/profile/09511450863275103185noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-47375047852463816502009-03-06T10:33:00.000-05:002009-03-06T10:33:00.000-05:00Oh, Sue - so sorry to hear it! I know that ache i...Oh, Sue - so sorry to hear it! I know that ache in the legs all too well. However, I'm going to go against the grain and suggest that you go ahead and start the doxy. You might remember my post from two days ago -- I talked about this very thing ... avoiding my meds (doxy specifically, which I didn't mention at the time) to avoid a herx -- I think maybe that was a mistake and wished I'd taken them - even if it meant feeling bad on my trips ... the delay (in my new thinking) just delays healing and gives the Lyme more time to run amuck in your body- possibly making the herx even worse. <BR/><BR/>Whatever you do will be the best decision for you and I'm feeling for you all the way.<BR/><BR/>best,<BR/>PamelaPamelahttps://www.blogger.com/profile/05578825920314020836noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-61033184984566944642009-03-06T03:50:00.000-05:002009-03-06T03:50:00.000-05:00Oh no, how disappointing and frustrating. Reminds ...Oh no, how disappointing and frustrating. Reminds me of that saying "How do you make God laugh? Tell her your plans."<BR/><BR/>Hang in there.Dusty Bogwranglerhttps://www.blogger.com/profile/14378437798741434260noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-87137899476475447472009-03-05T20:07:00.000-05:002009-03-05T20:07:00.000-05:00((hugs))((hugs))Knittahhttps://www.blogger.com/profile/15945035053199605558noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-82651553379840454562009-03-05T18:55:00.000-05:002009-03-05T18:55:00.000-05:00It strikes me as ironic that, once again, your dis...It strikes me as ironic that, once again, your disease is threatening to interfere with your Baltimore trip. The cosmos have a weird sense of humor! I'm so sorry to hear the Lyme is back -- yes, CFS is enough to have to deal with! Hopefully you'll make it through your trip without too much difficulty.<BR/><BR/>Braces are so much cooler now than when we were kids! I have a son with perfect teeth who was so disappointed when all his friends were getting braces. I, of course, am perfectly happy to not have the added expense!<BR/><BR/>Ah, things will work out somehow. They always do.Shellihttps://www.blogger.com/profile/04533995997196611261noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-78270267406006543632009-03-05T18:16:00.000-05:002009-03-05T18:16:00.000-05:00Thanks, Lori. You're right - things sometimes see...Thanks, Lori. You're right - things sometimes seem to go wrong all at once. Fortunately, Craig came home from school doing OK - not too upset anymore about the braces. He's a great kid - very upbeat and positive. he likes that same song you mentioned Jessie likes. He just downloaded it to his iPod this weekend and I was explaining to him what the lyrics meant. I know I'll be OK and we'll get through this - I just need to wallow a bit tonight. Thanks for thinking of me - it helps!<BR/><BR/>SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-20544550431537846802009-03-05T18:13:00.000-05:002009-03-05T18:13:00.000-05:00Thanks, Toni, for the kind words and encouragement...Thanks, Toni, for the kind words and encouragement. And I'm so sorry to hear you broke your ankle! I'm sure you hated to disturb your husband's trip, but sometimes we just can't control things. How nice, though, that he made dinners ahead for you and froze them - I'm very impressed! Rest up that ankle - I hope you recover soon.<BR/><BR/>SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-27027630467940605442009-03-05T17:26:00.000-05:002009-03-05T17:26:00.000-05:00Oh Sue, I'm so sorry. It does seem very unfair. ...Oh Sue, I'm so sorry. It does seem very unfair. Sometimes everything bad seems to happen at once. What do we do? We get through it some how. Jessie has this song (I think it's rap) but she says it's her theme song. "That Which Doesn't Kill Me Only Makes Me Stronger". <BR/><BR/>In the meantime, rest rest rest and take care of yourself. <BR/><BR/>You're in my thoughts and prayers.Lori Phttps://www.blogger.com/profile/01808703279193470654noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-67727529362242710452009-03-05T17:25:00.000-05:002009-03-05T17:25:00.000-05:00Dear Sue,I'm so sorry to read about the Lyme comin...Dear Sue,<BR/><BR/>I'm so sorry to read about the Lyme coming back. Having been through two herx-type reactions myself (on antivirals), I would suggest trying to avoid having the herx while on the trip. In my experience, it doesn't come on for several days, but it could be different with doxycycline. How many times have you started doxycycline and did the herx come on after the same number of elapsed days each time? If so, you have that to guide you.<BR/><BR/>And the rest, you already know: limit what you do as much as possible, etc.<BR/><BR/>I'm just so so sorry this has happened the week before your trip. We just can't control the course our lives will take. Last month, my husband was two days into a treasured month-long retreat he goes on every February (after painstakingly preparing food for me for the freezer before he goes) and I fell and broke my ankle. A friend took me to the doctor and, for two days, I told myself I could make it on my own, crawling on my hands and knees to the kitchen, etc. But with the CFS on top of the broken ankle, I finally saw I couldn't and had to call him home.<BR/><BR/>I hope you can figure out what's best for you to do this weekend with the minimum of mental upset. Again, I'm so sorry.<BR/><BR/>ToniTonihttps://www.blogger.com/profile/05729837575450453607noreply@blogger.com