tag:blogger.com,1999:blog-22576999.post4779691261238450193..comments2024-03-16T10:39:00.522-04:00Comments on Live With ME/CFS: The Paradox of Vacationing with ME/CFSSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-22576999.post-36598202877908276272016-03-31T14:35:50.333-04:002016-03-31T14:35:50.333-04:00Hi, Lynne -
I'm SO sorry for not replying to...Hi, Lynne - <br /><br />I'm SO sorry for not replying to your comment sooner! I sometimes get behind - just found the email notification with your comment and realized I never replied.<br /><br />Anyway, I don't worry about doing permanent harm. After 14 years with ME/CFS, I know my limits VERY well. Plus, taking beta blockers has greatly improved my stamina & allowed me to be much more active without crashing after. So, when traveling, I know what I can manage and mostly stay within those limits - if I do too much, I usually feel better in a day or two (again, thanks to beta blockers as well as inosine and LDN).<br /><br />Thanks for taking the time to comment and sorry again for not replying sooner :)<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-57664246704823664802016-01-22T12:51:20.611-05:002016-01-22T12:51:20.611-05:00I've never commented before but your post rang...I've never commented before but your post rang very true for me too. I love travel but find it difficult both physically and emotionally. It's easiest if it's a car trip and just me and hubby, but that's boring for him. I too feel like crying when everyone else is doing things I would love to do but cant. Then there's the fear that I'm over doing it that pollutes the things I do choose to do. Do you worry that you're doing permanent harm to your body when you're overdoing it so much? I may need to find some other way to expand my horizons than travelling.LynneShttps://www.blogger.com/profile/04417402620051656007noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-38535993204707472392016-01-10T12:43:29.395-05:002016-01-10T12:43:29.395-05:00Thanks so much for your thoughtful reply, Tara. It...Thanks so much for your thoughtful reply, Tara. It helps so much just to know there are other people out there who understand! I had no internet connection there and really missed being able to "talk" with my virtual ME/CFS friends about how I was feeling (hence, this long post!)<br /><br />Hmmmm...I wonder if your bad experiences in Alaska might be indoor allergens or mold in the place where you stay? Might try something different next time to test the theory. We sometimes go to the Black Hills of South Dakota in June to visit my husband's family, and the pines are all full of pollen when we are there - killer! I would LOVE to see Alaska one day :)<br /><br />Thanks for taking the time to comment and share your experiences.Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-41420563692227241552016-01-07T21:15:14.865-05:002016-01-07T21:15:14.865-05:00My family travels three times a year, and I comple...My family travels three times a year, and I completely empathize with your struggle. On the one hand, travel is one of the main things that keeps me going, psychologically. I've always been an explorer, but since the illness there are many, many days when I never make it out of our tiny condo. Our trips make me feel like I'm still engaged with the world around, still the adventurous person I used to be. And even when we're not on the go, I can occupy myself happily reliving the trip stories, organizing photos, and planning for the next trip. <br /><br />On the other hand....<br /><br />On the other hand, it's an investment of energy I really don't have. I always compare my energy budget to the money situation of a very poor person -- and trips are the equivalent of running up the credit cards on funds you don't have. The next few months are spent "paying off my debts," with extra pain, extra illness, extra days in bed, etc, etc. Even worse are the days you describe when you're actually ON the trip and too sick to function. So depressing to spend a day in bed when you could be out doing something great. In my case, my husband and daughter just go off and see the city without me. But it's extra hard when you're in an extended-family situation where others might be quietly rolling their eyes at your absence...<br /><br />Also, I totally agree that both your surrounding situation and destination can make a world of difference. We go to Alaska every year to visit family, and there's something there (allergy?) that KILLS me every time. It's one of the most beautiful places with many favorite sights, but I'm thinking of staying home in future years. Not worth being miserable all the time. <br /><br />This has been long -- obviously a topic I feel strongly about! Thanks for your blog, and good luck to you. TwoWishes Tarahttps://www.blogger.com/profile/16803149849293331364noreply@blogger.com