tag:blogger.com,1999:blog-22576999.post5135006346090561388..comments2024-03-28T17:38:39.157-04:00Comments on Live With ME/CFS: Progress in 2015 & Goals for 2016Sue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-22576999.post-90619729701646431802016-01-25T18:37:38.760-05:002016-01-25T18:37:38.760-05:00Thank you so much for the kind words about my blog...Thank you so much for the kind words about my blog and the support! You are right - it helps so much to know you are not alone :)<br /><br />Hope you have a good 2016, too!<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-53346093476194844332016-01-25T17:46:52.523-05:002016-01-25T17:46:52.523-05:00Hi Sue
I came across your blog before Xmas as I wa...Hi Sue<br />I came across your blog before Xmas as I was searching for ''how to live with cfs/m.e". I was diagnosed myself a year ago but been suffering for the last three years. I have enjoyed reading your blog and have resonated with many of the things you have been brave enough to share. The fact others are struggling the way I am has really helped me start to accept the condition - so thank you. I hope your goals for 2016 come to fruition and I wish you a happy and hopefully healthy year ahead. XAngel2knoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-34871615149208621722016-01-23T11:23:57.073-05:002016-01-23T11:23:57.073-05:00Wonderful, Jenni! You have a lot going on - so won...Wonderful, Jenni! You have a lot going on - so wonderful that you are trying to help your brother when you are so disabled yourself :) Those seem like reasonable, measurable goals - good for you! Hope that 2016 is a good year for you!<br /><br />Sue<br /><br />P.S. Sometimes my "walk" is a very slow-paced 10 minutes to the mailbox & around our tiny cul-de-sac! Like you, I find that just getting out of the house helps - emotionally as well as physically - even if it is just lying in a chair on our back deck :)Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-35395947262047162672016-01-23T03:23:50.236-05:002016-01-23T03:23:50.236-05:00Here's my goals
- continue my paid part-time w...Here's my goals<br />- continue my paid part-time work (almost all from home) and very part time MA study (via distance learning)<br />- continue to support my autistic brother to learn to be more independent - last year I taught him to cook (via Skype), but I order his shopping online, so I plan to teach him how to do that next.<br />- send birthday cards to my relatives. I can't complain about not getting cards if I never remember to send any!<br />- attempt to leave the house at least once per week every single week (going into the garden for a few minutes counts, if I'm really sick)<br />- reach my weight loss goal (2lb more to go, I average 1/2lb loss a month at best) and maintain my muscle mass at its current level (I lost about 2" muscle off my legs within my first year of being sick).<br />- work towards being able to be out of bed for more than 1hour a day on most days.<br /><br />(for context, I'm classed as having severe ME with orthostatic intolerance, as this all sounds way less impressive than your 'walk 4 times a week).Jennihttps://www.blogger.com/profile/10664877102519401075noreply@blogger.com