tag:blogger.com,1999:blog-22576999.post5360897227706485352..comments2024-03-16T10:39:00.522-04:00Comments on Live With ME/CFS: New Diet Countdown!Sue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger25125tag:blogger.com,1999:blog-22576999.post-71321122722043986082012-08-06T11:11:27.553-04:002012-08-06T11:11:27.553-04:00Hi - I'm from the UK so can't recommend sp...Hi - I'm from the UK so can't recommend specific products for you. however my miracle ingredient is xanthum gum, if you can get it. It allows you to make decent cakes. <br /><br />Before I go on let me said that gluten free not only gave me my life back for about 5 years (until excessive exercise caused more problems) I also found that many people with gluten problems can tolerate dairy when their gut recovers from the gluten. You have to be really strict and if you don't see an improvement after 4-6 weeks it probably won't help. However if you do see an improvement it will continue to improve.<br /><br />Back to diet help - http://www.piginthekitchen.co.uk/ is a good website and recipes can probably be adapted for the US. If you son will accept gram flour I sometimes use gramflour flatbread like a pitta wrap. Gram flour can be used as an egg substitute. I'd also suggest checking out coeliac websites and vegan websites for cooking ideas . http://www.celiacsociety.com/<br /><br />Good luck. If it doesn't help look into gut acidosis and maybe fecal bacteria transplants.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-71322596960177285452012-07-30T23:42:33.724-04:002012-07-30T23:42:33.724-04:00I munch on rice cakes a lot - still grain, but not...I munch on rice cakes a lot - still grain, but not a lot. They are very good spread with peanut butter. I also sometimes spread peanut butter on a banana and eat it with no bread.KipperCathttps://www.blogger.com/profile/12011060884920219554noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-43200538067959409422012-07-30T23:35:31.755-04:002012-07-30T23:35:31.755-04:00We love trail mix for breakfast. We make our own,...We love trail mix for breakfast. We make our own, from 1/2 various nuts and seeds & 1/2 dried fruit. We started this for something easy. It's actually the best breakfast I've tried as far as feeling satisfied & not running out of energy for a few hours. I love it with Greek yogurt, but am reconsidering the whole dairy thing.KipperCathttps://www.blogger.com/profile/12011060884920219554noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-44058507023560002942012-07-30T06:28:45.821-04:002012-07-30T06:28:45.821-04:00Renee..awesome sounding pancakes...must try those!...Renee..awesome sounding pancakes...must try those!Anniehttp://www.parentingcfs.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-65751159129495642282012-07-30T01:54:38.318-04:002012-07-30T01:54:38.318-04:00Try to get your carbs from fruits and vegetables i...Try to get your carbs from fruits and vegetables instead of grains. Have lots of fresh fruit and nuts available for snacks. Easy to grab and no prep work involved. I also had rice cakes on hand when I first went GF but I don't eat them anymore. Envirokids makes some nice GF "granola" bars.<br /><br />As far as lunches go:<br />Invest in some smallish containers and put together a variety of things making sure there is protein, fat and carb. Fruit with nut butters. GF crackers, muffins, cookies. Anything that goes into a sandwich can be eaten without the bread: chicken salad, egg salad, tuna salad, ham salad, rolls of lunch meat such as ham, beef or turkey with a little mustard for dipping. Pepperoni slices, salami slices, beef jerky. I used to buy wraps and then eat the innards tossing the wrap in the trash. I used to call these "wrap gut" lunches. Vegetable sticks with salad dressing for dipping.<br /><br />Here is a great resource for recipes and ideas:<br />http://www.chowstalker.com/<br />just type in breakfast or lunch into the search box and tons of stuff will show up. It is basically a collection of recipes from Paleo/Primal bloggers so you will end up all over the web and discover all sorts of neat sites. Paleo is no grains and no dairy so anything there is automatically GF and DF.<br /><br />A few words on the psychology of things. I found that since my body is incredibly reactive I've had to make the dietary changes slowly. Pick something once a month to concentrate on changing. If you have to go cold turkey then make an agreement with yourself, I will do this for one month with NO cheats. Then try a small snack of the pure food and see if you feel like crap. More often than not the reaction will be bad enough to keep you on the strict diet. However, this will not work unless the offending food is out of your system for four weeks first. Even small cheats will negate the elimination protocol. It is much easier to think in 30 day chunks. Your brain can wrap itself around it easier.<br /><br />Also while you are eliminating foods out of your diet try adding new ones in. Bring home a new fruit or vegetable to try once a week. I've been pleasantly surprised many times and this has given me more foods to work with. <br /><br />I've also had to add activated charcoal and bentonite clay into my supplements in order to help my body detox from the foods that got eliminated. If you are having trouble with the detox process, the diet eliminations can cause a severe herx reaction (as I found out the hard way). If the herx reaction lasts more than a week try some activated charcoal. If that doesn't work see your nutritionist. You might have to back off and do one food a month so the herx isn't as bad.<br /><br />Lengthy comment, i know, but this is a difficult and long process. If you have any questions at all just ask. I have tons of resources, vendors, cookbooks, blogs, etc I can recommend. Just ask.Baffledhttps://www.blogger.com/profile/16763003920036754454noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-71607913922323692412012-07-30T01:54:33.641-04:002012-07-30T01:54:33.641-04:00Bear with me this is going to be long.
Milks: ric...Bear with me this is going to be long.<br /><br />Milks: rice, almond, coconut, soy (but not recommended since unfermented soy is difficult to digest and some camps say is outright bad for you). Soy DOES screw with hormone levels so it really isn't a good choice. Make sure the milk substitute doesn't have added sugars or carrageenan in it which is another nasty chemical. Nut milks and coconut milk can be made at home with organic ingredients and no sugar or chemicals and it is easy to do. Let me know if you want the instructions.<br /><br />Breakfast: Eggs, steak, bacon, sausage, fruit smoothies with protein added as either nut butters or rice protein powders, fish(shrimp and salmon are my favs), hot cereal made with other grains such as buckwheat groats, teff, rice or amaranth, muffins made from alternative flours, make a vegetable stir fry to go with the eggs, onions, mushrooms, leaks, bok choy, asparagus, scallions are all great.<br /><br />Peanut butter alternatives: almond butter, cashew butter, sunbutter, applebutter. Keep them in the fridge after they are opened since the oils can go rancid in the hot weather.<br /><br />Since you are eliminating most grains, you will need to add good fats back in to your diet so that you will feel full. The best fats are saturated animal fats from pastured animals. Check with your nutritionist and see if she will let you use organic Ghee. It has the casein removed so is often tolerated by people who normally can't do dairy. Otherwise, get some 100% grass fed suet from Whole Foods meat department. You can call and order it. It is cheap and then render it down so that this becomes your primary cooking oil. This is easy to do and only needs to be done once every few weeks. It keeps for months in the fridge or freezer so if you made a large batch conceivably it can be made only twice a year. It can also be purchased from US Wellness Meats but they have a minimum purchase of 7lbs & $70 so you can't just get lard/tallow if you put in an order.Baffledhttps://www.blogger.com/profile/16763003920036754454noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-62877400736565196002012-07-29T08:10:39.226-04:002012-07-29T08:10:39.226-04:00Good advice!Good advice!Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-6114281517193510192012-07-29T08:10:09.705-04:002012-07-29T08:10:09.705-04:00Good idea, Faith! And I would love that chocolate...Good idea, Faith! And I would love that chocolate cake recipe!Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-82314995820136153642012-07-29T08:09:40.490-04:002012-07-29T08:09:40.490-04:00I will look for it! It's Sunday morning which...I will look for it! It's Sunday morning which means pancakes at our house, so I am going to try out 2 versions of gluten-free pancakes this morning - one from a pre-made mix and a simple homemade recipe from one of my blog readers.<br /><br />Wish me luck!Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-80703655416209111602012-07-29T06:40:47.563-04:002012-07-29T06:40:47.563-04:00I like smoked salmon. Works well for a snack or br...I like smoked salmon. Works well for a snack or breakfast or lunch. High protein, no gluten, no dairy, no corn, no soy. Other fish works well too, like tuna. <br /><br />Can he eat rice? I like cream of rice instead of oatmeal. Add some cinnamon and it's sweet. Add some veggies and it's savory.<br /><br />Beans with veggies are also good for filling up on. <br /><br />I think the key is to not think of certain types of foods as being breakfast or lunch foods and just eat whatever food is on your diet for any of the 3 meals. That works for me at least.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-40743970099703579782012-07-29T00:01:53.570-04:002012-07-29T00:01:53.570-04:00Michael gets a dairy free break every couple of we...Michael gets a dairy free break every couple of weeks - that seems to help. Our next door neighbor makes a gluten, dairy free chocolate cake that is unbelievably good.Faith Newtonnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-31802339962457928542012-07-28T23:13:48.821-04:002012-07-28T23:13:48.821-04:00Can you find Pamela's baking mix? You can use...Can you find Pamela's baking mix? You can use it for a number of things but we absolutely LOVE the pancakes and the waffles you can make from it. THey probably sell it at whole foods or maybe a co-op if you have one. A must for pancake lovers and WAY easier than mixing your own what with the 700 ingredients that must go in a gluten free baking mix (wait, I may be exaggerating a bit)upnorthhttps://www.blogger.com/profile/04283010424792189579noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-67127024713680265622012-07-28T08:08:49.182-04:002012-07-28T08:08:49.182-04:00Great idea! I did buy a box of Rice Chex this wee...Great idea! I did buy a box of Rice Chex this week. I used to love it when I was a kid. Not much fiber in it, but tasty!Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-31287185873316366192012-07-28T08:08:06.711-04:002012-07-28T08:08:06.711-04:00Char - You read my mind! I was just thinking abou...Char - You read my mind! I was just thinking about breakfast shakes/smoothies (lying in bed at 6 am this morning unable to sleep!). That's a great idea, and my kids love smoothies. And I thought that the soy yogurt might work well for smoothies, even though it doesn't taste very good on its own.<br /><br />I will definitely try some of your suggestions - thanks!Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-44472230666543592122012-07-28T08:06:27.793-04:002012-07-28T08:06:27.793-04:00Buckwheat doesn't have gluten??? Woohoo! Sur...Buckwheat doesn't have gluten??? Woohoo! Sure enough, I looked it up and read that buck WHEAT is a misnomer - it is gluten-free. I LOVE buckwheat pancakes! That's great news.<br /><br />I appreciate all the ideas - you guys are just full of wonderful information!Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-25437120878977870202012-07-28T08:04:19.593-04:002012-07-28T08:04:19.593-04:00Thanks for all the great ideas! I will definitely...Thanks for all the great ideas! I will definitely be eating plenty of nuts...but Jamie only likes peanuts! And even then, he claims to only like peanut BUTTER, not peanuts - LOL! I can sometimes slip some finely chopped nuts into various dishes but he'd never eat them whole or plain. Teenagers!<br /><br />But I am definitely going to order those wraps you mentioned!Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-59835124363050446622012-07-28T08:01:13.224-04:002012-07-28T08:01:13.224-04:00Ah, yes, Renee...once again, if it were just me......Ah, yes, Renee...once again, if it were just me...Jamie says (vehemently) that he HATES almonds and coconut...so that is why we need the soy milk in his diet for now.<br /><br />Thanks so much for all the great ideas!Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-9431605965135545312012-07-28T06:12:47.507-04:002012-07-28T06:12:47.507-04:00Another snack for teenagers is Rice Check trail mi...Another snack for teenagers is Rice Check trail mixes that you can make. Recipes on box- my girls liked the one make with nut butter and dark chocolate of course. I'm not saying that its healthy but it was quick and easy and their friends liked it too which made it good to share.Charhttps://www.blogger.com/profile/09786274543942041822noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-58626176393661707322012-07-28T06:08:00.812-04:002012-07-28T06:08:00.812-04:00The breakfast problem was solved in our house by u...The breakfast problem was solved in our house by using breakfast shakes - very quick, easy and they hold you til lunch. You can substitute in which protein source works for you. In blender add almond milk, 1/2 banana,almond or peanut butter and ice cubes. Or make a fruity one with OJ, frozen fruit, 1/2 banana and protein powder(I use Standard Process Complete bc organic and loaded w veggies too.)When teenager was fussy, I even made chocolate(soy, rice or almond milk) - banana- peanut butter combos. The advantage of a breakfast shake is :easy, quick, extra fluid and they go down quick with a straw. Be sure to rinse out blender if using protein powder as it dries on if left for awhile and the shakes are best fresh. For those not dairy free yogurt is a great addition too.Charhttps://www.blogger.com/profile/09786274543942041822noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-69597505523792267042012-07-28T05:20:14.932-04:002012-07-28T05:20:14.932-04:00Buckwheat pankakes made with soya milk are good. I...Buckwheat pankakes made with soya milk are good. I often eat refried beans with eggs and a couple of rice or corn cakes for breakfast. Or if I have the energy I make a flat bread with ground up seeds (linseed or flax seed with sunflower seeds and pumpkin seeds) and gram flour mixed with a little olive oil and water, rolled out then pan fried without oil.<br /><br />I don't know whether it would be to Jamies taste but I find a great picknick food to be onion bhaji's and pakora made with gram flour. Mix the flour with curry spices and water to make a thick and glupy batter then add finely sliced onions or a mixture of grated vegetables and deep fry for a few minutes(or shallow fry and turn over half way through) I usually bake them for 10 minutes aswell for best results. You can make a big batch and freeze the after frying then bake them when you take them out of the freezer.<br /><br />I've heard Mozzarella cheese is one of the least harmful cheeses, so a Pizza treat once a month or so with a gluten free Pizza base might be a good reward and worth the sin.<br /><br />Good luck!ME CFS Self-help Guruhttps://www.blogger.com/profile/16389404574775132959noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-3184750566158401802012-07-28T02:40:54.106-04:002012-07-28T02:40:54.106-04:00Nuts and fruit! I'll eat two apples and some b...Nuts and fruit! I'll eat two apples and some berries and 2 servings of nuts. But I LOVE fruit - if I could survive on that alone I would!<br /><br />I often get Bob's Red Mill oats, I just couldn't give up my oatmeal. <br /><br />Veg and homemade hummus or and I like this best Broccoli dipped in olive oil and balsamic (if you can tolerate vinegar).<br /><br />For lunch I often do the wraps I mentioned in the last post(they are corn free as well as gluten free). However lately I have been just having the lunch meat by itself. But I was trying to reduce calories.<br /><br />I'll often have dinner leftovers for breakfast, I don't do mornings so I cook a bit more for dinner to eat in the morning. <br /><br />Eliminating corn means popcorn too, yikes!LifeTrekhttps://www.blogger.com/profile/03954038001699250590noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-3003635272958722822012-07-27T21:24:54.530-04:002012-07-27T21:24:54.530-04:00As I said for US it has worked easier to work out ...As I said for US it has worked easier to work out what we can eat more than not eat.<br />Breakfast is eggs or fruit.<br />James is highly allergic to eggs so he has rice bread or left overs.<br />I find I cook a bit more each night and that is bags often by the first kid.<br /><br />Soup, rice for breakfast - I know I know way different than wheat products....<br /><br />Breakfast I have always found the hardest.<br /><br />I'm with you I'd hit wheat out of the diet first - hopefully jamie will see and feel better - then when he has a little bit he will feel also how unwell it can make him.<br /><br />Love LeanneLeannehttps://www.blogger.com/profile/00420783423172718178noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-80474573517487740022012-07-27T19:46:50.862-04:002012-07-27T19:46:50.862-04:00I think if you go in thinking you will try it for ...I think if you go in thinking you will try it for a month or two and then see how you feel.....feeling better will out weigh the losses. I would recommend Almond Milk, vanilla flavored or Soy Delicious coconut milk....many different brands. I eat eggs for brk or almond flour quick bread with almond butter on it. I also eat pancakes made with just three ingredients....egg, almond butter and a mashed banana and i use almond butter and blueberries on top. Those are even very sweet for me since I have not had sugars for so many years. I often eat veggies for brk..roasted ones, and I put broccoli in my scrambled eggs for variety. Brk. is the hardest! There are gluten free granola bars Jamie might like. We ALWAYS toasted our bread made with br. rice flour and often still toast our paleo breads. Just makes it easier. Joel was and is eating gluten free...our Lyme doctor too and she eats the Red Mill gluten free old fashioned or steel cut oats. I think it would depend on the person maybe. It is why I went paleo though...the cross contaminated and the genetically modified grains. I truly have so much more energy and less stomach issues being totally grain free. sure hope this all goes well BUT it takes time, Sue. Hard at first, but like anything we adjust. So many blogs that write about being gluten free and have great recipes. Wishing you well.Reneehttps://www.blogger.com/profile/07089685282700680525noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-92200477577671248922012-07-27T18:55:25.234-04:002012-07-27T18:55:25.234-04:00Thanks for the link, Sarah!Thanks for the link, Sarah!Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-68290404777912858292012-07-27T18:27:20.833-04:002012-07-27T18:27:20.833-04:00I'm interested to hear about how this goes for...I'm interested to hear about how this goes for you both. <br /><br />I've considered trying gluten free, but I just don't think that would work with my family dynamics. But, I do have a resource for you.<br /><br />One of the bloggers that I follow has quite a few gluten free (and some dairy free too) baking and meal recipes. <br /><br />Here is a link:<br />http://theprettybee.blogspot.com/p/keep-in-touch.html<br /><br />If you scroll down there on the page are links for the gluten free recipes and the dairy free. I hope that may help a little.<br /><br />Also, for a time I didn't drink milk and I found almond milk to be a wonderful substitute!Sarah Dawneéhttps://www.blogger.com/profile/07705550127874942327noreply@blogger.com