tag:blogger.com,1999:blog-22576999.post6008613944228207550..comments2024-03-27T14:05:22.815-04:00Comments on Live With ME/CFS: Movie Monday 4/8 (on Tuesday)Sue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-22576999.post-67031621232740759842013-04-11T15:14:38.507-04:002013-04-11T15:14:38.507-04:00P.S. Many patients and CFS groups have chosen to u...P.S. Many patients and CFS groups have chosen to use "ME/CFS" on their own while they wait for official change - this encourages use of ME, while still connecting it to the term CFS which has - for better or worse - become somewhat well-known.<br /><br />On my own blog, I tend to go back and forth between CFS and ME/CFS, simply so that people searching for either term online can find my blog.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-74190946873764993772013-04-11T15:12:15.967-04:002013-04-11T15:12:15.967-04:00The CDC has definitely NOT officially changed the ...The CDC has definitely NOT officially changed the name of CFS.<br /><br />Lots of patient groups and advocates and CFS experts have been begging for a name change (though no one can agree on exactly what the change would be), but so far, the CDC stands firm on "CFS."<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-10321714264795392082013-04-11T13:21:36.822-04:002013-04-11T13:21:36.822-04:00nevermind...guess it was an april fool's joke....nevermind...guess it was an april fool's joke...not really in the best taste...hkdhttps://www.blogger.com/profile/03606859927429573387noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-10444342412923321742013-04-11T13:19:03.297-04:002013-04-11T13:19:03.297-04:00Sue...since you are always in "the know"...Sue...since you are always in "the know" ...did the CDC actually apologize and change the name of CFS? saw it on a few blogs but can't find good info on google...hkdhttps://www.blogger.com/profile/03606859927429573387noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-63036508985423970312013-04-10T09:29:13.139-04:002013-04-10T09:29:13.139-04:00Thanks for the suggestion, Sally. That sounds intr...Thanks for the suggestion, Sally. That sounds intriguing - I like Anthony Hopkins.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-41329197788858333902013-04-10T09:15:58.748-04:002013-04-10T09:15:58.748-04:00Sorry to hear about your allergies Sue! I really ...Sorry to hear about your allergies Sue! I really enjoyed skyfall too, as you know :) <br />I've been watching a few films on netflix so I'll have a look for the sessions. <br /><br />I've seen the world's fastest Indian too sally, it's a good one :) Anonymoushttps://www.blogger.com/profile/03566660359682513818noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-85583691874976983662013-04-10T03:29:23.684-04:002013-04-10T03:29:23.684-04:00+1 to "Skyfall" - I loved it. Haven...+1 to "Skyfall" - I loved it. Haven't seen "The Sessions" but will look it out.<br /><br />Another lovely film based on a true story is "The World's Fastest Indian" about a motor bike race. Now I'm not really into motorbikes, but this is a really lovely story starring Anthony Hopkins. Sally Burchhttps://www.blogger.com/profile/09581869564363992356noreply@blogger.com