tag:blogger.com,1999:blog-22576999.post6028882744573281585..comments2024-03-28T17:38:39.157-04:00Comments on Live With ME/CFS: Happy New Year!Sue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-22576999.post-90242465061659094072009-01-08T10:48:00.000-05:002009-01-08T10:48:00.000-05:00Sue - thanks so much for the pep talk. This is so ...Sue - thanks so much for the pep talk. This is so hard. I always question if I'm doing the right treatment so I guess patience is the key. I'm still not convinced I don't have Lyme but need to find a Dr. who'll investigate this thoroughly for me. <BR/><BR/>Thank you for your blog and being there on the rough days!!Paulahttps://www.blogger.com/profile/07944556482198112659noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-13440456816147417342009-01-06T16:28:00.000-05:002009-01-06T16:28:00.000-05:00Paula - I know about those days when you need to c...Paula - <BR/><BR/>I know about those days when you need to connect with someone. I'm here!<BR/><BR/>And congratulations! The fact that you feel much worse is really good!! I know that sounds crazy, but it's true. What you're experiencing is called a herx reaction. It basically means that the anti-viral is working - it's killing off a bunch of virus and the dead virus is flooding your bloodstream, triggering your immune system to go a little crazy, making you feel so terrible. It's a very good sign that the anti-viral is going to help you.<BR/><BR/>The tough part is that a herx reaction can sometimes last for a long time - in some cases, many months. It doesn't mean that every day will be this bad, but you could be in for some rough times. Just keep reminding yourself that it's a sign that the Famvir is working and that eventually you'll feel better. Many people with CFS report that the first improvement they notice (after the herx) is clearer thinking.<BR/><BR/>One thing you can do when the herx gets really bad is to skip a dose of Famvir. That will allow your body a little break without affecting your overall treatment.<BR/><BR/>I personally didn't have much of a herx with anti-virals, probably because my viral counts were fairly low, but I did experience a fairly severe herx reaction during my recent treatment for Lyme disease (the herx reaction is well-known in treating Lyme).<BR/><BR/>So, I know this is a very tough time for you, but hang in there! This is good news, and things WILL get better. In the meantime, stock up on good DVDs and books! And, remember I'm here if you need to talk about it.<BR/><BR/>SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-90999006839981392062009-01-06T15:56:00.000-05:002009-01-06T15:56:00.000-05:00Happy new year Sue! I am glad you are doing so wel...Happy new year Sue! I am glad you are doing so well.<BR/><BR/> I am having a really bad day and just need to reach out to someone. I have been taking Famvir now for a month and feel worse. I feel my brain is just shutting down and everything aches. I even had joint pain in knee and elbow. I just feel I am getting progressively worse. Did you say in another entry that Famvir worked great for you and quickly?? Thanks..Paulahttps://www.blogger.com/profile/07944556482198112659noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-84837145014211224912009-01-06T13:12:00.000-05:002009-01-06T13:12:00.000-05:00Happy New Year! I'm glad you are finally feeling ...Happy New Year! I'm glad you are finally feeling better. I'm so jealous you got to go hiking! I am going to do that on one of my really, really good days. Great picture of your boys, too.Shellihttps://www.blogger.com/profile/04533995997196611261noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-56309887016693273652009-01-05T16:54:00.000-05:002009-01-05T16:54:00.000-05:00Happy New Year to you and yours! I'm glad you're g...Happy New Year to you and yours! I'm glad you're gaining some energy again.Sherryhttps://www.blogger.com/profile/11034488498196936495noreply@blogger.com