tag:blogger.com,1999:blog-22576999.post802248762432320559..comments2024-03-28T17:38:39.157-04:00Comments on Live With ME/CFS: Lyme Again?Sue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-22576999.post-81857248916914590762014-07-15T19:06:07.515-04:002014-07-15T19:06:07.515-04:00So sorry to hear you are feeling so alone and isol...So sorry to hear you are feeling so alone and isolated - it's a very common feeling among ME/CFS patients. Have you tried interacting with other patients online? there are lots of great ME/CFS groups on facebook - just search for ME/CFS and you'll find a bunch or let me know if you are looking for a particular type of group.<br /><br />You're not alone!!Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-53707589357289969712014-07-15T19:04:37.229-04:002014-07-15T19:04:37.229-04:00So glad you found some help and are feeling better...So glad you found some help and are feeling better! No, mine wouldn't be anything environmental - I am in the same house, etc. and just had sudden onset joint pain last week - that means almost certainly Lyme.<br /><br />Hope you continue to get better!Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-27877357283779493612014-07-15T12:39:46.458-04:002014-07-15T12:39:46.458-04:00I need someone to talk to. I've been so ill f...I need someone to talk to. I've been so ill for so long, I've lost all my friends. Guess they weren't my friends to begin with, but I'm so lonely! So isolated! Have no energy to go anywhere or do anything, I can hardly take care of myself and keep it together for work. So sick of being sick.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-59134773127877216002014-07-15T12:27:28.067-04:002014-07-15T12:27:28.067-04:00Could it be due to mold exposure?? I have been di...Could it be due to mold exposure?? I have been diagnosed with CFS, but as we know, it is not a cause, merely a cluster of symptoms. I could also be diagnosed with depression, fibromyalgia, and a few other disorders that are so much alike but have no definitive test. However, this latest bout which started 3.5 years ago, took me to 11 doctors and one finally diagnosed me with biotoxin illness due to mold, and at least one toxic mold WAS eventually found in my office at work growing in the walls of the water-damaged building. The diagnostic tests that my doctor used are far different than routine blood tests which showed that there was "nothing wrong with me." If you suspect mold, you might read "Mold Warriors" by Dr. Shoemaker. He's a little hystrionic, but the science he uses is solid. Recently others have been publishing on mold illness, and it is starting to be accepted by some doctors. There is a treatment protocol, but it takes a very long time to recover. Still, I feel infinitely better than I did before I started the treatment and now that I'm removed from the mold exposure.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-47004657383587036082014-07-15T03:17:48.882-04:002014-07-15T03:17:48.882-04:00Hi Sue, maybe it wont be the same this time around...Hi Sue, maybe it wont be the same this time around if its lyme. It doesnt mean you have to be in treatment for Three years again. But if its possible stay on doxy a long time to really put it down. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-80720206919344520012014-07-14T19:37:05.086-04:002014-07-14T19:37:05.086-04:00I'm so sorry to hear this. I wish I could just...I'm so sorry to hear this. I wish I could just make everyone in the world better! Sending lots of positive vibes and a great big virtual hug your wayhayleyesztihttps://www.blogger.com/profile/14517966025318167347noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-50724981890816813422014-07-14T18:04:08.813-04:002014-07-14T18:04:08.813-04:00Darn it, you don't deserve this nonsense, Sue....Darn it, you don't deserve this nonsense, Sue. You already know what I'm going to say though, I mean you sort of know. Clayton Nolte believes that basically everyone has Lyme to some degree, and that Structured Water helps heal it. Just something to consider, my friend. Love you so much. I'm so grateful for Facebook and the amazing connections it's provided me with people.Anonymoushttps://www.blogger.com/profile/17481862533130829293noreply@blogger.com