tag:blogger.com,1999:blog-22576999.post8610588809222696081..comments2024-03-16T10:39:00.522-04:00Comments on Live With ME/CFS: A Long JourneySue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-22576999.post-54086448174707785132011-09-01T10:46:09.437-04:002011-09-01T10:46:09.437-04:00Hi Sue!
Sounds like a great vacation.
I've jus...Hi Sue!<br />Sounds like a great vacation.<br />I've just found your blog & I look forward to reading more of your posts. I'm 36 & have lived with CFS since I was 12.Alisonhttp://www.chronicmuse.comnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-54370961319506946512011-08-21T20:51:40.336-04:002011-08-21T20:51:40.336-04:00I glad that you got to enjoy your time with family...I glad that you got to enjoy your time with family....Keenahttps://www.blogger.com/profile/04872631822031248926noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-78861876769913911842011-08-17T12:19:33.022-04:002011-08-17T12:19:33.022-04:00Well, Upnorth, you have just been through a really...Well, Upnorth, you have just been through a really difficult time. Setbacks like that are hard to deal with no matter how many years we've been sick! I went through a bad 9-month period two winters ago. Hang in there - it WILL get better again.<br /><br />I will definitely write a post about what has helped. Maybe after my nap today - tomorrow is another crazy busy day, driving to see the Lyme doctor.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-44862361767456018512011-08-17T12:06:31.544-04:002011-08-17T12:06:31.544-04:00I'd love to know what you think has helped...Y...I'd love to know what you think has helped...You know it's just over 9 years for me as well. I got sick in June, 2002.<br /><br />It seems like you have a good perspective when it comes to dealing with and accepting the ups and downs as part of living with this illness. I wish I could learn to do this better.upnorthhttps://www.blogger.com/profile/04283010424792189579noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-19667793303202567582011-08-17T11:32:25.128-04:002011-08-17T11:32:25.128-04:00Baffled -
Unfortunately, there's no magic to...Baffled - <br /><br />Unfortunately, there's no magic to my improvement. It's the result of being VERY persistent and trying LOTS of different treatments. I take dozens of pills every day, but some of them have helped. I guess I need to write a detailed post about what has helped (and maybe what hasn't). This is certainly not spontaneous recovery (or recovery of any kind), just a few treatments that are helping to control symptoms and a couple treatments that are helping my immune system.<br /><br />As for timing, I've had CFS for 9+ years and have been through many ups and downs in that time.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-83041396018701017302011-08-17T02:08:51.086-04:002011-08-17T02:08:51.086-04:00You have come such a long way. You give me hope. ...You have come such a long way. You give me hope. I'm so glad you had a wonderful weekend this time around.<br /><br />May I ask how long it was before you started feeling better after the initial nastiness? I'm now 15 months into it and feeling a bit discouraged by my lack of progress.Baffledhttps://www.blogger.com/profile/16763003920036754454noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-31243511312210667682011-08-17T00:49:41.838-04:002011-08-17T00:49:41.838-04:00Fantastic, glad you had a good time.
It is so h...Fantastic, glad you had a good time. <br /><br /> It is so hard for people to understand how sick we can be with me/cfs, sometimes I look in the mirror at my 'normal' reflection and lapse into happy denial myself. But then reality sets in pretty quick (as quickly as I need to sit down). <br /><br />It's great to hear of your improvement, I look forward to the day when my health mirrors my reflection.<br /><br />I realise that you are in no way cured but what a long way you have come, fantastic. :)<br /><br />thanks for sharing. KXhttps://www.blogger.com/profile/07736967406360912646noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-76532240409842769112011-08-16T22:53:22.391-04:002011-08-16T22:53:22.391-04:00I am so glad you had such a great & memorable ...I am so glad you had such a great & memorable time this go-around!!!Bloomin'Chick Johttps://www.blogger.com/profile/08655635228669237336noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-2826170878401106702011-08-16T21:33:20.668-04:002011-08-16T21:33:20.668-04:00Praise God for your wonderful return to better hea...Praise God for your wonderful return to better health! <br /><br />I'm so glad you can do so many things and enjoy your family so much!<br /><br />Blessings,<br />ElaineElainehttps://www.blogger.com/profile/06922200217770835483noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-21308501304422397072011-08-16T20:11:28.412-04:002011-08-16T20:11:28.412-04:00This is so hopeful....that things have improved.
I...This is so hopeful....that things have improved.<br />I know what vacations can be like when we're sick. I'm so glad you had a good time....and your family too.upnorthhttps://www.blogger.com/profile/04283010424792189579noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-37370105646787624712011-08-16T19:48:04.925-04:002011-08-16T19:48:04.925-04:00Oh, how wonderful Sue! I am so glad you were able...Oh, how wonderful Sue! I am so glad you were able to go and be an active participant..Yahoo!Reneehttps://www.blogger.com/profile/07089685282700680525noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-41374830865379552812011-08-16T19:06:49.593-04:002011-08-16T19:06:49.593-04:00I'm truly glad that you had a wonderful time! ...I'm truly glad that you had a wonderful time! I'm sorry that the last time was so difficult. <br /><br />Your blog is truly an encouragement to me and my own health journey.<br /><br />Thank you for sharing.Sarah Dawneéhttps://www.blogger.com/profile/07705550127874942327noreply@blogger.com