tag:blogger.com,1999:blog-22576999.comments2024-03-16T10:39:00.522-04:00Live With ME/CFSSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger6023125tag:blogger.com,1999:blog-22576999.post-17962437073508858402024-03-16T10:39:00.522-04:002024-03-16T10:39:00.522-04:00I started to feel better almost immediately and di...I started to feel better almost immediately and did not get worse first. I was in really bad shape because of the sudden shift from decades of steady hormones (on the BC pill) to suddenly withdrawing them. My new OB/GYN worked with me to find the right dose of progesterone.<br /><br />Hope that helps - let me know if you have any other questions - <br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-33696815000745845622024-03-16T10:11:52.490-04:002024-03-16T10:11:52.490-04:00How long did it take for your hormones to balance ...How long did it take for your hormones to balance out when you started the estrogen patches & progesterone pill? Did you feel worse before you felt better? Thanks Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-77303108715221354222024-02-01T14:20:43.339-05:002024-02-01T14:20:43.339-05:00Thank you for taking the time to comment and share...Thank you for taking the time to comment and share that info. Since it differs a bit (except for recommending that T3 be in the top part of the normal range - I said the same here) from the information I found in my research (I included the links to my sources in the blog post), can you share with me your sources? Thyroid function is so complicated! I would love to better understand it and the most effective approaches to treating it, both for myself and my readers.<br /><br />Thanks!Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-28851448210234509952024-01-29T21:30:29.824-05:002024-01-29T21:30:29.824-05:00T4 only needs to be in mid range if you're not...T4 only needs to be in mid range if you're not on t3 meds. If you're on all or mostly t3 then t4 levels will be low and that's fine. The recommended dosage for t3 is between 50 and 100mcg. T3 should be raised every 1 to 2 weeks, not waiting as long as t4. Mid range isn't high enough for t3. It should be top quarter or very top of the range. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-257601652702822362024-01-28T12:09:27.465-05:002024-01-28T12:09:27.465-05:00Then you could definitely benefit from treating hy...Then you could definitely benefit from treating hypothyroidism and bringing the T3 and T4 up higher! Remember that optimal thyroid function is when T4 is in the MIDDLE of the normal range and T3 is at the higher end of the normal range - just barely into the normal range (low-normal) is still dysfunctional, especially with your T3 low.<br /><br />I would definitely talk to your doctor about trying some treatments to bring those well into the normal range - it helps to improve everything! I feel SO much better than I did a year ago when I was just starting this process. Remember it can take some trial and error (which means time, patience, and persistence), testing every 2 months after a treatment change - but it is so worth it. Best of all, this is a measurable thing that any doctor can help you with.<br /><br />Good luck! Please let me know if you have any questions, but please check out that Stop the Thyroid Madness website I linked to and I would also give the Iodoral (iodine supplements) a try.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-33529809675019680802024-01-28T07:49:21.963-05:002024-01-28T07:49:21.963-05:00I have low T3 but low normal tsh and t4. I’ve been...I have low T3 but low normal tsh and t4. I’ve been dealing w chronic fatigue for 2 years after covid and a list of issues Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-89928208514720936022023-12-03T14:02:16.255-05:002023-12-03T14:02:16.255-05:00So sorry to hear that, Frances! Those family visit...So sorry to hear that, Frances! Those family visits are exhausting, though I'm sure you loved seeing your grandson. I hope you've been able to rest and are beginning to recover.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-81096107407352241012023-12-01T09:52:48.500-05:002023-12-01T09:52:48.500-05:00So sorry you're having such a hard time. I was...So sorry you're having such a hard time. I was at my daughter's for 3 days seeing my 5 Yr old grandson, came back Tues morning exhausted (daughter doesnt fully get it) and have been in bed since. Franceshttps://www.blogger.com/profile/13808932571214669367noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-47735432430265830262023-11-30T16:57:37.926-05:002023-11-30T16:57:37.926-05:00Wonderful! It's always a good time for a treat...Wonderful! It's always a good time for a treat for yourself :) So glad to hear you're enjoying my book. Very glad you're finding it helpful.<br /><br />If you feel up to it, I'd appreciate a quick review, wherever you bought it - even just a rating or a few words (especially on Amazon) can help other people to find it.<br /><br />Thanks! Let me know if you have any questions - <br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-2828175860841380342023-11-29T16:57:36.134-05:002023-11-29T16:57:36.134-05:00Wonderful, Andee! So glad you saw some thing you l...Wonderful, Andee! So glad you saw some thing you liked :)<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-39298077589581767562023-11-29T14:45:38.739-05:002023-11-29T14:45:38.739-05:00I added a few of these to my wish list. Thanks fo...I added a few of these to my wish list. Thanks for the ideas!Andee Neffhttps://www.blogger.com/profile/05121987452927731321noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-38874039895377828272023-11-25T09:54:01.574-05:002023-11-25T09:54:01.574-05:00Hi Sue I bought your book and kept it for myself! ...Hi Sue I bought your book and kept it for myself! What a fantastic book I'm really enjoying it. Thanks for taking the time to put this together It's so helpful.Jkayhttps://www.blogger.com/profile/08217366133619226502noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-5989181900126008602023-11-21T17:43:51.704-05:002023-11-21T17:43:51.704-05:00Sorry to hear that! I hope you've also found s...Sorry to hear that! I hope you've also found some treatments that help - <br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-28340380328389261592023-11-21T17:35:00.014-05:002023-11-21T17:35:00.014-05:00Wonderful, Frances! You deserve it! Glad you saw s...Wonderful, Frances! You deserve it! Glad you saw some enticing things here. I added a few to my own wish list while making this list!<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-50113478688638472102023-11-21T15:59:07.628-05:002023-11-21T15:59:07.628-05:00Have same Lyme/ long civ/ gut dysbiosos, etc 🙏❤️Have same Lyme/ long civ/ gut dysbiosos, etc 🙏❤️Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-12513056452192899382023-11-21T14:54:27.930-05:002023-11-21T14:54:27.930-05:00Thanks for suggesting so many great things. I'...Thanks for suggesting so many great things. I'll be treating myself! Lol<br />Franceshttps://www.blogger.com/profile/13808932571214669367noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-20459642324289314872023-11-21T14:22:25.903-05:002023-11-21T14:22:25.903-05:00Wonderful! So great to hear some personal feedback...Wonderful! So great to hear some personal feedback on those - they look great but I hadn't tried them myself, so thanks for taking the time to comment and share your thoughts! Glad you found something that helps :)<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-58293284031149330902023-11-21T11:14:51.467-05:002023-11-21T11:14:51.467-05:00Thank you for the recommendations. Been wearng my ...Thank you for the recommendations. Been wearng my new Orthofeet slippers for a week now and they are a blessing for my feet! I have CPRS in my feet and ankles, so the faux fur works wonders for the pins and needles. My other shoes are sandals and walking shoes from Orthofeet.Captain Khttps://www.blogger.com/profile/06015460199465360072noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-73528897132290933472023-11-12T12:38:10.133-05:002023-11-12T12:38:10.133-05:00Yes, it was the same for me before treatments. Thi...Yes, it was the same for me before treatments. This is where treating OI makes a HUGE difference. I take low-dose beta blockers that lower my HR to more normal levels - and that gives me the wiggle room to actually do stuff without crashing! Life-changing for my son and I.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-49187808878203648562023-11-11T19:40:29.730-05:002023-11-11T19:40:29.730-05:00Rest is the only thing that helps. I aim to keep m...Rest is the only thing that helps. I aim to keep my heart rate under 100, but there are nights where my resting heart rate is 83, which doesn't give me much wiggle room.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-39822419643204086922023-11-11T16:19:19.840-05:002023-11-11T16:19:19.840-05:00Ah, yes! You're right. I looked up the generic...Ah, yes! You're right. I looked up the generic name but for some reason didn't notice the brand name Abilify - I have heard of patients using it. So, it's part of this standard treatment protocol for this severe ME clinic in Norway. Yes, that would be interesting to find out if it helps with moderate ME, too.<br /><br />Thanks for the info!<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-72390222859322799272023-11-11T15:09:42.584-05:002023-11-11T15:09:42.584-05:00Hi Sue, I get you have heard the last med is low d...Hi Sue, I get you have heard the last med is low dose ambilify. Which Whitney and other severe ME have been using for years. Think they try and stay away from too much info on it bc it’s a psychiatric drug and worried will push the “psych” angle. I haven’t heard of moderate using - will be interesting. Thanks as always for such good information Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-87956296203026707482023-11-03T16:18:46.232-04:002023-11-03T16:18:46.232-04:00Re: mouthwash -
No, I don't use any mouthwas...Re: mouthwash - <br /><br />No, I don't use any mouthwash regularly. When my yeast flares up badly, I sometimes rinse (swish and spit) with a few drops of tea tree oil (a natural antifungal) in a cup of water (don't swallow it), as described in this post. You have to be careful with commercial mouthwashes - many contain alcohol which would make yeast worse.<br /><br />All the other treatments listed here work effectively. I haven't seen any specifically anti-candida mouthwashes.<br /><br />Sue<br />Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-48704521278843614582023-11-03T00:17:34.552-04:002023-11-03T00:17:34.552-04:00Do you use mouthwash if so which one?Do you use mouthwash if so which one?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-42569516067108849122023-10-01T16:36:56.311-04:002023-10-01T16:36:56.311-04:00Sounds nice, Cindy! We're just a few miles fro...Sounds nice, Cindy! We're just a few miles from PA - Delaware is a very small state.<br /><br />Glad you got to enjoy the retreat and some nice views - <br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.com