tag:blogger.com,1999:blog-22576999.post1367455402090696997..comments2024-03-27T14:05:22.815-04:00Comments on Live With ME/CFS: Finding a Doctor for ME/CFSSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-22576999.post-77497968010879376862021-02-24T10:44:30.767-05:002021-02-24T10:44:30.767-05:00Hello Sue, I just discovered your blog today and I...Hello Sue, I just discovered your blog today and I am overwhelmed by your wealth of knowledge and generosity. Thank you so much, I shall go through everything to see what I can add to my meagre ME treatment plan (Perrin Technique treatments and naturopathic prescriptions).<br />I wanted to mention that Dr. Bansal, one of the UK doctors you listed, hss indeed retired. I was referred by my GP to Dr. Bansal's clinic at Epsom St. Helier Hospital in February 2020 and finally received a letter from the 'clinic' 3 months later. The 'clinic' is now a part-time service (because all the staff there work part time... how very unhelpful) and it offers only Cognitive Behavioural Therapy and Graded Exercise Therapy. After another 5 months of waitlisting I was put on a 90-minute zoom call with around 20 other ME patients and guided through a powerpoint presentation on energy levels and pacing. Exhausting. We were all then offered to sign up for either CBT or GET or a 6-week (both had 12-month waiting lists) in learning to plan, implement and master an activity plan (6-month waiting list) - all via zoom due to the covid pandemic. If one didn't sign up for one of these options a letter would be sent back to our GP stating that we had declined treatment for ME. I chose option 3 as I need to be seen as compliant in order to keep income support payments, but what Dr. Bansal's former clinic now offers is quite clearly not going to help anyone with ME.<br /><br />Kind regards<br />Anne<br /><br /><br />Anonymousnoreply@blogger.com