tag:blogger.com,1999:blog-22576999.post1490246161677949157..comments2024-03-28T17:38:39.157-04:00Comments on Live With ME/CFS: CFS-Retrovirus Link Confirmed!Sue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger12125tag:blogger.com,1999:blog-22576999.post-40127994440470260152015-01-26T21:47:02.815-05:002015-01-26T21:47:02.815-05:00Actually, this is old news - the theories around X...Actually, this is old news - the theories around XMRV and ME/CFS were later disproven.Sue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-60350855657978432152015-01-26T10:15:35.976-05:002015-01-26T10:15:35.976-05:00how does one test for XMRV or MLVs? thanks.how does one test for XMRV or MLVs? thanks.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-24646717656925827332010-08-24T22:16:17.061-04:002010-08-24T22:16:17.061-04:00Excellent news!Excellent news!Faith Newtonhttps://www.blogger.com/profile/14758418647278444204noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-45741691058477719472010-08-24T20:40:59.591-04:002010-08-24T20:40:59.591-04:00It is exciting news indeed. I can only speak for m...It is exciting news indeed. I can only speak for myself, but it's always been clear, even from my blood work, that there's a viral component to my illness even though I tested negative to XMRV. When I was on the anti-viral, Valcyte, my HHV-6 titers went through the roof. The doctors said it was as if the Valcyte had coaxed the HHV-6 out of hiding. Unfortunately, the Valcyte didn't get rid of the virus in my body. But it told me that my CFS was viral-linked. <br /><br />I hope this is the beginning of a new era in how the medical community and the general population view this illness.Tonihttps://www.blogger.com/profile/05729837575450453607noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-23017283302046259222010-08-24T18:24:50.157-04:002010-08-24T18:24:50.157-04:00I ton more links:
http://www.forums.aboutmecfs.org...I ton more links:<br />http://www.forums.aboutmecfs.org/showthread.php?7087-Media-Coverage-of-Dr.-Alters-NIH-paper-post-stories-hereLuke Shttps://www.blogger.com/profile/18092987090327808826noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-81724705937921451342010-08-24T17:42:45.220-04:002010-08-24T17:42:45.220-04:00Oh - Even better news then! :)Oh - Even better news then! :)Laura (aka Mom)https://www.blogger.com/profile/09511450863275103185noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-6986655195207246452010-08-24T17:33:15.262-04:002010-08-24T17:33:15.262-04:00Laura -
No, these would be something entirely ne...Laura - <br /><br />No, these would be something entirely new for us!! Jessica and I have both taken anti-virals (Jessica with far more improvement than me). The drugs they're talking about now are anti-retrovirals. Retroviruses have a unique ability to enter the DNA and require very specialized medications. Initial trials in the lab (not with patients yet) show that these drugs would work against the retroviruses they're finding in CFS. A whole new frontier!<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-76240928208993990562010-08-24T17:30:06.593-04:002010-08-24T17:30:06.593-04:00Very exciting!! Thanks for the info and links.
A...Very exciting!! Thanks for the info and links.<br /><br />As far as the anti-retroviral drugs, it would be the same or similar to what Jessica's on and you've been on...right?Laura (aka Mom)https://www.blogger.com/profile/09511450863275103185noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-39014549781520673632010-08-24T16:48:07.310-04:002010-08-24T16:48:07.310-04:00What's most interesting to me was that they us...What's most interesting to me was that they used stored blood from the mid-90's that were originally tested for mycoplasma infection in CFS patients. None was found. But those samples were kept and this time they got a hit for the MLVs! They also went back this year and collected blood from 8 of those original people and found that they still had the MLVs in 7 of the 8 patients, although I think they said they had mutated somewhat (as would be expected with retroviruses).Davidhttps://www.blogger.com/profile/10778342601996392913noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-72145574193602543152010-08-24T15:57:39.320-04:002010-08-24T15:57:39.320-04:00Wonderful news!!!Thanks for all the links here.......Wonderful news!!!Thanks for all the links here.....Reneehttps://www.blogger.com/profile/07089685282700680525noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-52437438213186113622010-08-24T15:55:30.742-04:002010-08-24T15:55:30.742-04:00Cool!
D.Cool!<br /><br />D.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-51603695651634675982010-08-24T15:02:13.148-04:002010-08-24T15:02:13.148-04:00I agree! This is exciting news indeed.I agree! This is exciting news indeed.upnorthhttps://www.blogger.com/profile/04283010424792189579noreply@blogger.com