tag:blogger.com,1999:blog-22576999.post1645209233267241925..comments2024-03-28T17:38:39.157-04:00Comments on Live With ME/CFS: Flu Shots and CFSSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-22576999.post-62544341054948377672011-03-09T10:03:44.945-05:002011-03-09T10:03:44.945-05:00It does sound as if you have ME/CFS - some doctors...It does sound as if you have ME/CFS - some doctors feel more comfortable calling it post-viral fatigue (admittedly, CFS is a terrible name!)<br /><br />And, yes, it also sounds as if the flu shot stimulated your immune system further (CFS is partly defined by a dysfunctional immune system).<br /><br />I got a flu shot for the first time this year. I had a severe 1-month long crash following the shot...but since then, I've had a much better winter than usual, so maybe it helped. I won't be getting another one, though - too big a risk.<br /><br />I hope you recover soon from the shot - <br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-82125610491708416242011-03-08T23:17:23.384-05:002011-03-08T23:17:23.384-05:00Hi. I have post-viral fatigue (parvovirus), not of...Hi. I have post-viral fatigue (parvovirus), not officially diagnosed as CFS yet. I was told not to get my flu shot, the day after I did get it. I am still learning about all the little things that can have such a huge effect on your body when you are battling something like this.<br /><br />I was almost pain and fatigue free before the flu shot, in November 2010, and have been very fatigued and in a lot of pain ever since. Not certain it was because I had the shot, who knows eh.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-38573356076405301622010-11-05T16:14:50.200-04:002010-11-05T16:14:50.200-04:00D -
I actually love getting an opportunity to ed...D - <br /><br />I actually love getting an opportunity to educate someone about CFS, especially someone in the medical profession! In this case, the nurse hadn't read my chart - she didn't know I had CFS - but I still explained about OI. One person at a time...<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-36444498434707874262010-11-05T12:38:39.087-04:002010-11-05T12:38:39.087-04:00Yikes, hope that gets better soon. I don't ge...Yikes, hope that gets better soon. I don't get them myself, but we don't have any kids or teenagers in the house and I'm working from home, so I'm not getting bombarded every day. Totally different if you have people if your house that are going out to public environments everyday.<br /><br />It bothers me when they think you are having a case of the nerves when you get racing pulse from OI. I get sooooo sick of having to educate each person on each individual little symptom and how it isn't psychosomatic. Like they can know you're sick in a general way but still think you just need to 'buck up' about loud noises, etc. Being in that "but I'm not... it's just" position of having to explain away things when you already don't feel well is a kicker for me. (Even when they mean well)<br /><br />Take care!<br /><br />D.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-23479301908430557522010-11-05T01:47:15.856-04:002010-11-05T01:47:15.856-04:00Thank you so much for posting this. I've been...Thank you so much for posting this. I've been debating about getting one. I'm tempted to skip it cuz I usually feel crappy the day after and that was before I got sick. I'm also doing pretty crappy right now and really don't savor the idea of making it worse. I might change my mind but right now my house is stocked up with Lysol spray and Chlorox wipes. Next time I'm in a drugstore I'm picking up gloves and surgical masks. I'm just crossing my fingers.<br /><br />I would love to hear about other people reactions to the flu shot.Baffledhttps://www.blogger.com/profile/16763003920036754454noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-37709269742310302922010-11-04T23:12:57.306-04:002010-11-04T23:12:57.306-04:00I got one for 10 years before I got sick (from 199...I got one for 10 years before I got sick (from 1991 to 2001), but I haven't had one since the viral infection that led to CFS. I'm just too concerned about the consequences but then I'm in permanent state of crash or semi-crash, so I think that adds to my reluctance. My doctor leaves it up to me. I agree that there's no right or wrong answer on this.Tonihttps://www.blogger.com/profile/05729837575450453607noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-80588667852759111862010-11-04T18:25:31.807-04:002010-11-04T18:25:31.807-04:00I usually abstain (at the doc's suggestion), b...I usually abstain (at the doc's suggestion), but last year Zack told me I should probably get it, because the flu was pretty dangerous. I had a crash too - mild to moderate would describe it, I suppose. And now I don't know if I'll risk it this year or not. <br /><br />PS - Thanks for all your lovely comments on my days of truth posts; I really appreciate them. (And never, ever worry about not being caught up - I hardly ever am, and appreciate your thoughts whenever they show up.)Never That Easyhttps://www.blogger.com/profile/04008749218695113192noreply@blogger.com