tag:blogger.com,1999:blog-22576999.post1782549669624799197..comments2024-03-28T17:38:39.157-04:00Comments on Live With ME/CFS: The October Slide: ME/CFS and Infectious TriggersSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-22576999.post-47640825775333065922020-10-18T14:18:15.392-04:002020-10-18T14:18:15.392-04:00So glad to hear that LDN has helped you, too, Kati...So glad to hear that LDN has helped you, too, Katie! That's great - I know there are some studies showing its effectiveness for fibro.<br /><br />I know of many patients who make up their own low-dose naltrexone, and that's great - I'm glad it works for you! But, it is also - as I say in this post - quite inexpensive even if you get it through a compounding pharmacy. Can definitely get it for less than $100 for 3 months' worth (and sometimes even less than that) AND if you have insurance, they will cover some of that (usually you have to submit claims for reimbursement for compounded meds after you first pay out of pocket).<br /><br />So, there are lots of options, and most of them are inexpensive. Inosine is also super-cheap :)<br /><br />Great that each patient can do what works for them. <br /><br />Thanks for sharing this, since I hadn't mentioned the DYI option!!<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-45015738499842918642020-10-18T12:27:10.095-04:002020-10-18T12:27:10.095-04:00I have Fibromyalgia (plus other tuings). I struggl...I have Fibromyalgia (plus other tuings). I struggle with fatigue but I don't think I have MF/CFS. However, LDN has helped immensely. I've asjed my GP to prescribe 50mg tablets which i make into a suspension. Without insurance coverage, 12 tablets cost $15. I use 2.5 mg at night and 1.5 mg in the morning. So, 4.0mg a day. One pill lasts 12 days. So, not so expensive.Katie Clarkhttps://www.blogger.com/profile/05399758318979937742noreply@blogger.com