tag:blogger.com,1999:blog-22576999.post3304576645225947776..comments2024-03-27T14:05:22.815-04:00Comments on Live With ME/CFS: New Lyme ArticleSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-22576999.post-17387266939170912422010-08-28T11:27:43.134-04:002010-08-28T11:27:43.134-04:00Judy -
No, Lyme and CFS are NOT mutually exclusi...Judy - <br /><br />No, Lyme and CFS are NOT mutually exclusive!! Jamie and I both have both, as do many people. Lyme is one of the known triggering infections for CFS, like mono. 10% of the people who get Lyme and are successfully treated develop CFS (just like the 10% with mono or parvovirus). My case was the opposite - I had CFS for 8 years and just got Lyme 2 summers ago (click on the Lyme category under this post if you want to read more about my experience).<br /><br />Lyme is treatable with antibiotics. If it is diagnosed and treated early, then it is relatively easy to eradicate, often with just 4-8 weeks of antibiotics. The problems come up when it goes undiagnosed for a long time...then the Lyme spirochetes "hide" in the tissues (not in the bloodstream) and it becomes difficult for the antibiotics to get at them. I also think mine has been more difficult to treat because of the immune dysfunction of CFS - people with CFS have immune systems that UNDER react to bacterial infections, so my immune system isn't doing its part in the fight against Lyme...still, my Lyme doctor is confident I can get rid of it.<br /><br />As for you, my own personal opinion is that it is unlikely you have Lyme simply because you HAVE improved over time - if you had an untreated Lyme infection all these years, you'd be getting worse, especially with neurological symptoms. Still, I think it was smart to get tested! Let me know when you get the results - <br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-17603220346881721362010-08-28T10:27:44.524-04:002010-08-28T10:27:44.524-04:00Wow, Sue. That may have been more than I wanted to...Wow, Sue. That may have been more than I wanted to know about Lyme Disease! On account of I am waiting to learn if I have it or not. It is much more serious than CFIDS, right? If you have Lyme doesn't that mean you don't have CFIDS? I sure hope for the best for you and Jamie!!!<br /><br />Judy<br /><br />I better understand now how important it has been for me over the years that I have slowly increased exercising, that I am eating healthy, and taking good supplements. Not to mention stopping drinking (the hardest one for me)!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-29216155319392356802010-08-27T20:40:01.323-04:002010-08-27T20:40:01.323-04:00It is a great article, Sue! Jody writes such good...It is a great article, Sue! Jody writes such good stuff and it was nice to see you quoted in it.Reneehttps://www.blogger.com/profile/07089685282700680525noreply@blogger.com