tag:blogger.com,1999:blog-22576999.post5515437444397330747..comments2024-03-28T17:38:39.157-04:00Comments on Live With ME/CFS: Why Everyone with ME/CFS or FM Should Be Evaluated for Tick InfectionsSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-22576999.post-31830317925827832212022-07-18T10:47:30.832-04:002022-07-18T10:47:30.832-04:00Anon -
Well, that is what I thought the second t...Anon - <br /><br />Well, that is what I thought the second time it recurred, but by the 3rd time ... I realized it just never left my system, and both Lyme specialists I have seen agreed. Which is the way Lyme works! The basic spiral-shaped bacteria (spirochetes) bury themselves into tissues and joints (hence the difficulty in catching them in the bloodstream and in treating via the bloodstream with abx), but they also convert over time into two other harder-to-reach forms: round or cyst form and biofilms. Both make it even harder for treatments to reach the bacteria - this stuff knows how to protect itself!<br /><br />It's actually quite common for tick infections, including Lyme to stick around for years or decades, because of these characteristics - and especially in cases like my son and I where we have dysfunctional immune systems that don't fight off bacteria effectively.<br /><br />All of this is why early detection, diagnosis, and treatment are so critical. But many people are like us - we just continue treating to keep the infections "controlled" within our bodies - almost impossible to eradicate by this time but we can keep them controlled well enough to prevent symptoms.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-18831833858971171832022-07-18T10:12:18.707-04:002022-07-18T10:12:18.707-04:00Sue, is it possible that your recurring Lyme is in...Sue, is it possible that your recurring Lyme is in fact re-infection given you have so many ticks on your property? It’s something I’ve wondered about on my own property and I keep returning to the thought that perhaps we should move.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-67023862544678732052017-02-21T11:31:32.010-05:002017-02-21T11:31:32.010-05:00Hello Beatrice,
Did you manage to find a speciali...Hello Beatrice,<br /><br />Did you manage to find a specialist in France? i would be very interested to get into touch if this was the case. Thank you in advance.<br /><br />Jean Anonymoushttps://www.blogger.com/profile/00501179468879542943noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-26472787259011744132016-11-19T13:44:50.978-05:002016-11-19T13:44:50.978-05:00Thanks, Valerie. So sorry to hear what happened to...Thanks, Valerie. So sorry to hear what happened to you - glad you did get diagnosed before things got any worse. That's why I am constantly urging people to consider tick infections & get evaluated! Stories like ours are all too familiar.<br /><br />Thanks for taking the time to share your story.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-54941645456059692032016-11-19T11:21:19.697-05:002016-11-19T11:21:19.697-05:00Hi Sue,
This is such a great post! I saw your li...Hi Sue, <br /> This is such a great post! I saw your link on Donna Gran'ts post that she created this week about Lyme. I have also had a CFS/ME diagnosis before my own Lyme diagnosis. I am so thankful that I got tested as now I have permanent heart damage due to Lyme that was left untreated. I hate to think what it would be like if I had just left it and never known! Valeriehttp://lilacandlyme.comnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-56619023277487543432014-06-20T12:27:49.895-04:002014-06-20T12:27:49.895-04:00Good for you, Beatrice - it really makes sense for...Good for you, Beatrice - it really makes sense for anyone with ME/CFS to at least look into tick infections. Check those links I included in the post for finding a doctor - I think they may include some international resources?<br /><br />I am hearing from some of my European friends that Lyme is definitely getting more attention there finally.<br /><br />Good luck - <br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-44870682424963862262014-06-20T10:36:19.563-04:002014-06-20T10:36:19.563-04:00Thanks, Sue. I'm going to look for a specialis...Thanks, Sue. I'm going to look for a specialist in France.Beatrice Desperhttps://www.blogger.com/profile/10843520699216089362noreply@blogger.com