tag:blogger.com,1999:blog-22576999.post7202694853419745491..comments2024-03-28T17:38:39.157-04:00Comments on Live With ME/CFS: CFS and ValcyteSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-22576999.post-27963494606963652732008-07-08T22:04:00.000-04:002008-07-08T22:04:00.000-04:00Well, the good thing, which is what I wanted to sh...Well, the good thing, which is what I wanted to share with you is that In September 2007 I started a protocol with homeopatic antivirals from LaboLife EBV and CMV and I measured my serology on these viruses before and after the treatment, and here are the results:<BR/><BR/>June 2008 results (9 months of treatment with Labolife):<BR/><BR/>IgM ANTI V.C.A. EBV; c.arb.(0 1) +POSITIVE (Titer 1/10) (same as 9 months ago, the reference value for this lab was 1/10 instead of 1/20)<BR/>IgG ANTI V.C.A. EBV; c.arb.(0 1) +POSITIVE (Titer 1/80) (much lower now, 9 months ago was it was 1/640 with the same lab)<BR/>IgG ANTI E.B.N.A. EBV; c.arb(0 1)+POSITIVE (Titer 1/160) (much lower now,9 months ago was it was 1/320 with the same lab)<BR/>IgG ANTI E.A. EBV; -NEGATIVE 1/10 (slightly higher, irrelevant though 1/5)<BR/><BR/>Srm-ANTIBODIES IgM ANTI V.C.A. CMV; c.arb.(0,1,2) -NEGATIVE (Titer 0,19) (same as 9 months ago)<BR/>Srm-ANTIBODIES IgG ANTI V.C.A. CMV; c.arb.(CMV.O.M.S) +POSITIVE (Titer 160) (much lower now, 9 months ago was it was 233 with the same lab)<BR/><BR/>Conclusion:<BR/><BR/>I have been able to lower the viral load to almost normal levels, the only "but" is the IgM of my EBV that still remains slighly positive, but the titer of the IgG's is now normalized, and this shows also in my symptoms, I can do sports again and even sweet in the gym!!! and I do not have a constant nausea feeling as before... If one of your patients main problems is the serology of these viruses, I guess you should give it a go. It did work on me, and besides is safe non toxic treatment, like could be Valcyte, Ampligen, Zelitrex, etc...<BR/>I still have problems with my gut, flora, IBS, etc, but my quality of life has improved significantly. I hope this can be of help for all of you.<BR/><BR/>All the best<BR/><BR/>Carlos<BR/>www.pochoams.blogspot.comcarlitoshttps://www.blogger.com/profile/02678863106324149504noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-90348957023480357582007-08-20T16:17:00.000-04:002007-08-20T16:17:00.000-04:00Hi, Yvette - Thanks for taking the time to leave y...Hi, Yvette - <BR/><BR/>Thanks for taking the time to leave your comments. Yes, please feel free to link to this entry or copy the links - whatever works best for you. I'll take a look at your daughter's blog when I get a minute. It's great that she's found the blogging helpful...and really wonderful that you're so involved and supportive! I hope Valcyte helps her.<BR/><BR/>SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-6838845558904209012007-08-13T18:52:00.000-04:002007-08-13T18:52:00.000-04:00Hi Sue,My daugher desi is a valcyte patient and is...Hi Sue,<BR/><BR/>My daugher desi is a valcyte patient and is journaling her experiences while on valcyte. www.desivalcyte.blogspot.com<BR/>Your web references are excellent. Do you mind if we link to your July post? Or we could just copy the websites? Thanks for your information. Exellent! I think that writing about your experiences is therapudic. I know that Desi's blog has helped in educating her friends and family. She has also gotten support from other cfids patients. It has been a good thing. Good luck on your anti-viral Valtrex! <BR/><BR/>YvetteAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-77912087849473156552007-08-13T15:28:00.000-04:002007-08-13T15:28:00.000-04:00Thanks for the clarification and additional link. ...Thanks for the clarification and additional link. <BR/><BR/>This is exactly why I posted the links and information - I'm no expert! It makes me a little nervous that so many people are coming to me for information about Valcyte.<BR/><BR/>Hopefully, the links I posted (plus yours) will provide the kind of real, accurate information that seems so desperately needed in the CFS community.<BR/><BR/>Thanks for taking the time to post the correct stats.<BR/><BR/>SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-48361957094061865912007-08-12T16:43:00.000-04:002007-08-12T16:43:00.000-04:00Not quite accurate info on Valcyte studies."The to...Not quite accurate info on Valcyte studies.<BR/><BR/>"The total number of patients treated today is 30, 26 had "elevated titers" and 4 had "low titers". Of the 26 patients with "elevated titers", 25 have had a dramatic recovery. Of the 4 patients with "low titers", none have responded." <BR/><BR/>And the current study will have 30 patients.<BR/><BR/>"All patients will be given the active drug (20 patients) or placebo (10 patients) for 6 months and followed for an additional 3 months."<BR/><BR/>http://www.clinicaltrials.gov/ct/gui/show/NCT00478465?order=4Anonymousnoreply@blogger.com