tag:blogger.com,1999:blog-22576999.post7394163530921634056..comments2024-03-27T14:05:22.815-04:00Comments on Live With ME/CFS: The Thrill of Victory and the Agony of DefeatSue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-22576999.post-2000407089343614612013-05-14T13:25:28.184-04:002013-05-14T13:25:28.184-04:00I want to thank you too because I go through this ...I want to thank you too because I go through this as well (right now as a matter of fact, crying as I type this although the beginning of May has been hellacious for me ever since I lost my daughter the day before mother's day 14 years ago so that's not helping). It is SUCH an emotional and physical roller coaster for those of us living with disease! Bloomin'Chick Johttps://www.blogger.com/profile/08655635228669237336noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-56068982819223479632013-05-11T19:40:07.448-04:002013-05-11T19:40:07.448-04:00Thank you thank you thank you....this is the harde...Thank you thank you thank you....this is the hardest part to describe to others how crazy you feel...i often lie and bed and rewind history and think is this all some weird messed up dream...thanks again xo hdhkdhttps://www.blogger.com/profile/03606859927429573387noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-71905263749046120742013-05-10T08:00:20.750-04:002013-05-10T08:00:20.750-04:00That's just me! Yesterday I had the first goo...That's just me! Yesterday I had the first good day I've had in a while and u felt on top of the world, I wondered why people ever hit in bad moods when they have health! <br />Then today I'm right back, and I'm struggling to be patient, and I'm easily upset. And I've no idea why yesterday was good and back to normal today! Anonymoushttps://www.blogger.com/profile/03566660359682513818noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-33933651125930644952013-05-09T19:43:10.645-04:002013-05-09T19:43:10.645-04:00Wow! It is amazing, what you describe.....ups and...Wow! It is amazing, what you describe.....ups and downs..good days...bad....the dance of ME/CFSReneehttps://www.blogger.com/profile/07089685282700680525noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-27331709909661133472013-05-09T19:05:37.749-04:002013-05-09T19:05:37.749-04:00A very relateable post, Sue. It's only been tw...A very relateable post, Sue. It's only been two years for me, but I'm already starting to forget what it was like to NOT be on this rollercoaster. Patrick W. Calvinhttps://www.blogger.com/profile/18367341763526176019noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-52926344956196046772013-05-09T16:51:03.080-04:002013-05-09T16:51:03.080-04:00I could have written this same post (except the go...I could have written this same post (except the good days lately). I mean it seems like one day things aren't too bad and the next (unperdicatable much of the time) the body swings into severe illness and our mood with it. We are tough women for ploughing through all this, that's what I think.upnorthhttps://www.blogger.com/profile/04283010424792189579noreply@blogger.com