tag:blogger.com,1999:blog-22576999.post8296437395732939018..comments2024-03-27T14:05:22.815-04:00Comments on Live With ME/CFS: TV Tuesday: Big SkySue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-22576999.post-81950172076409563232021-10-06T09:59:51.944-04:002021-10-06T09:59:51.944-04:00Hi, Tammy - and welcome!
I'm so sorry to hear...Hi, Tammy - and welcome!<br /><br />I'm so sorry to hear that you have 3 sick kids (2 here - plus me - at one point, though one is now recovered!), but I'm glad you found your way here. And YES, please do join the Parents' group! It is an incredible group of parents from all over the world, full of compassion and support but also very well-in formed and always happy to help others - it's a great community. Here's the link: <br />https://www.facebook.com/groups/164665786958252/<br /><br />Just be sure to answer the questions that pop up so the admins can add you right away.<br /><br />And I am always here to help, too! You can follow me on Twitter or like my Facebook page for this blog, or ask questions right here.<br /><br />Thanks for taking the time to leave a comment - so glad the blog has been helpful to you so far. With kids, I would recommend that diagnosing and treating OI be one of the first things you do, as it often brings dramatic improvements (for adults, too). More on OI:<br />http://livewithcfs.blogspot.com/2010/02/orthostatic-intolerance-and-cfs.html<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-85741533359431424982021-10-06T01:26:32.161-04:002021-10-06T01:26:32.161-04:00Just wanted to thank you so very much for your blo...Just wanted to thank you so very much for your blog! I stumbled across it last week, and it has already given me so much information that I didn't have previously! I have three children with ME/CFS, and it has been a heart-breaking and difficult road. Thank you for passing along all of your treatment plans, medicines, herbs and recommendations. I just saw where you have a Facebook Parent Support Group that I would also like to join. Please keep up the great work! You are doing a tremendous service.Tammyhttps://www.blogger.com/profile/02373709597875364935noreply@blogger.com