tag:blogger.com,1999:blog-22576999.post8619281948493433164..comments2024-03-27T14:05:22.815-04:00Comments on Live With ME/CFS: Latest on XMRV and WPISue Jacksonhttp://www.blogger.com/profile/14532098225905355332noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-22576999.post-64160666327737652432011-10-13T20:33:25.545-04:002011-10-13T20:33:25.545-04:00Yeah, Judy, looks like my ID doctor had it right, ...Yeah, Judy, looks like my ID doctor had it right, too. She told me to wait to get tested because she sent identical samples to VIP Dx and got different results back.<br /><br />We'll see what happens next!<br /><br />Thanks for the kind thoughts.<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-85114834528323971102011-10-13T19:51:28.480-04:002011-10-13T19:51:28.480-04:00OMG, I was just blessed with some good news from y...OMG, I was just blessed with some good news from your post, and for some reason that is what I am choosing to focus on in this comment to you, Sue!<br /><br />Simply put; my doctor was right! And the reason that means anything to me is because, as you know, I have been waiting for 14 years to find a doctor here in San Diego who is "worthy" to be the doctor of a CFS patient: ME!<br /><br />Anywho, he had agreed with me many months ago that there was no need to test me for XMRV because, mostly, there was no known treatment for it.<br /><br />Meanwhile..!... I send only loving kindness and healing to you and your beautiful family!<br /><br />Love, JudyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-12695939043527657372011-10-13T18:56:13.899-04:002011-10-13T18:56:13.899-04:00Hobbz -
Ha ha...I just read your comment and had...Hobbz - <br /><br />Ha ha...I just read your comment and had to laugh. You said I seem to be handling the stress so well, but I had just finished ranting to my sons about how I can't do all this anymore! Timing is everything, huh? Just so you don't think I'm yelling at a sick kid, they are both doing well this week, but my husband is traveling, and I am totally worn out from all the driving, cooking, cleaning, laundry, appts, etc., etc. I BADLY need a break and some time to myself.<br /><br />But thanks for the nice compliment :)<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-45871610206880033762011-10-13T13:13:31.367-04:002011-10-13T13:13:31.367-04:00you seem to be handling all this stress so well! ...you seem to be handling all this stress so well! I so admire your strength and courage! I hope your son continues to improve! It's so hard watching our children suffer and not being able to ease their burdens! Thanks for your great blog....hobbzAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-22576999.post-81754285599065328182011-10-13T11:07:55.075-04:002011-10-13T11:07:55.075-04:00I'm excited that this has sparked all kinds of...I'm excited that this has sparked all kinds of research. I hope at some point it translates....so disappointed about XMRV...it seemed like a simple answer to a complex illness and I don't want us all to have to wait years and years more.<br /><br />I think this is the most susinct sum-up I've seen Sue - well done.<br /><br />I hope you find something that helps Jamie feel a bit better. Fingers crossed.upnorthhttps://www.blogger.com/profile/04283010424792189579noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-2435684366354863112011-10-13T08:34:24.842-04:002011-10-13T08:34:24.842-04:00Lara -
Yes, I agree about general public percept...Lara - <br /><br />Yes, I agree about general public perception. Whenever anything new about CFS is in the news now, I have friends and family e-mailing and calling to tell me they saw a story about CFS - we've definitely moved more into the mainstream....finally!!<br /><br />SueSue Jacksonhttps://www.blogger.com/profile/14532098225905355332noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-58805247662412467032011-10-12T23:12:35.782-04:002011-10-12T23:12:35.782-04:00Thanks for your careful summary, Sue. I do agree t...Thanks for your careful summary, Sue. I do agree that we're making progress. In the 23 years I've been living with CFS, I've seen a huge change from, "It's all in your head" to now having people say, "I know someone with that. I hope a cure is found soon."Lara Garyhttps://www.blogger.com/profile/06878096436667840185noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-8465690079577517512011-10-12T19:14:11.383-04:002011-10-12T19:14:11.383-04:00Great summary Sue, thanks for making the time. I d...Great summary Sue, thanks for making the time. I do agree, as you know, that at least there is a lot more scientific interest & public awareness out there thanks to XMRV - which moves the level of neglect of this condition to something slightly less criminal. Hmm emotive language but you know what I mean! Hope Jamie's feeling less ghastly. Have a good day. : )Anniehttps://www.blogger.com/profile/09677903765123497474noreply@blogger.comtag:blogger.com,1999:blog-22576999.post-45412251067693059532011-10-11T21:51:20.633-04:002011-10-11T21:51:20.633-04:00Wow...this really helped me with all that has been...Wow...this really helped me with all that has been out there swirling around! Thank you Sue...so much.Reneehttps://www.blogger.com/profile/07089685282700680525noreply@blogger.com