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Monday, November 18, 2024

Chronic Illness Vlog: A Week in My Life During a Crash (Plus, Nature!)

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I've been stuck in a mysterious relapse of my ME/CFS for the past month. I've had flu-like aches every day. I thought that--like las...
Monday, November 11, 2024

Movie Review: My Old Ass

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I'd heard about this new movie with the funny name on Pop Culture Happy Hour podcast, where all the hosts and guests were enthusiastic...
Sunday, November 10, 2024

Weekly Inspiration: Books, TV, and Movies to Tickle Your Funny Bone

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Hey, chronic illness spoonie friends! Earlier today, I was updating and sharing an older post of mine from 2019, Weekly Inspiration: Laugh! ...
4 comments:
Wednesday, October 30, 2024

Excellent Medical Explanation of Exertion Intolerance (PEM) in ME/CFS & Long-COVID

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I was crashed today, for mysterious reasons only my body understands, so I settled in to watch a video I bookmarked ages ago: Dr. Todd Daven...
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Wednesday, October 23, 2024

The Joys of Fall

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I thought I'd combine a quick personal update with sharing my latest camping vlog. This past month has been so busy here! I love fall wi...
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Friday, October 18, 2024

4-Part Webinar on Severe ME/CFS: Care, Rights & Research

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If you or a loved one are among the 25% of ME/CFS patients who are severely affected by the disease and mostly homebound or bedridden, there...
Wednesday, October 09, 2024

What To Do If You Get COVID, including Paxlovid (Especially for ME/CFS or Long-COVID)

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The greatest danger of COVID--for everyone--is that it can cause lingering, long-term or permanent effects. Research (and much experience ov...
Sunday, October 06, 2024

Fall Camping Vacation Vlog - Nature Videos

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Whew, it's been a whirlwind couple of weeks, filled with catch-up medical appointments and family obligations, but before that, my husba...
Friday, September 27, 2024

Two New Orthostatic Intolerance (OI) Resources to Help Patients & Doctors

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Dr. Peter Rowe, MD, of Johns Hopkins is a renowned specialist in pediatric ME/CFS and Orthostatic Intolerance (OI) aka dysautonomia and is r...
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Saturday, September 14, 2024

Relaxing & Peaceful Nature Videos

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Oh, my gosh--I can't believe I haven't written a new post here in three weeks! I did send a newsletter out, so that's a win. Sor...
Friday, August 23, 2024

Summary of Long-COVID Statistics and Recent Research

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I recently read an excellent article on long-COVID from PBS News that I wanted to share with you. My time and energy are very limited this ...
Wednesday, August 14, 2024

New 15-min Documentary on ME/CFS & Other Patient Stories

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Image & logo from Solve ME - www.humansofchronicillness.org My energy is still lower than usual since my COVID infection five weeks ago,...
Monday, August 12, 2024

Movie Monday: Killers of the Flower Moon

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Since I got COVID in July, we've been tackling some of the longer Oscar-nominated movies we missed last year. Last weekend, we watched K...
Friday, August 02, 2024

Chronic Illness Vlog: COVID and ME/CFS - Small Improvements, Small Joys

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It's now been three weeks since my COVID infection struck , on top of ME/CFS, and I am still struggling. Many of the viral symptoms have...
Thursday, July 25, 2024

I'm Still Here! COVID on Top of ME/CFS

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Ironically, just three days after my last post, 2024 Mid-Year Update: Yeast, Diet, NO Crashes , COVID hit me with full force. For the last 1...
Wednesday, July 10, 2024

2024 Mid-Year Update: Yeast, Diet, No Crashes!

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  While I often mention how I'm doing at the start of blog posts on other topics and in my chronic illness vlogs, I thought it was time ...
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