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Showing posts with label pacing. Show all posts
Showing posts with label pacing. Show all posts
Wednesday, October 30, 2024

Excellent Medical Explanation of Exertion Intolerance (PEM) in ME/CFS & Long-COVID

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I was crashed today, for mysterious reasons only my body understands, so I settled in to watch a video I bookmarked ages ago: Dr. Todd Daven...
1 comment:
Thursday, April 18, 2024

Spring Camping Vacation Vlog

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The blog has been quiet because we were on vacation last week! I not only had no internet; we didn't even have cell service much of the ...
Wednesday, February 07, 2024

My 2023 In Review: Chronic Illness Rollercoaster!

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Chronic Illness is often said to be a rollercoaster (in fact, Riding the Chronic Illness Rollercoaster is the name of a chapter in my book ...
Wednesday, December 13, 2023

Chronic Illness Vlog: Still Relapsed, Still Flat, Trying Treatments

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I recorded a vlog last week, showing an honest view of my life with chronic illness, which is currently quite restricted. My months-long rel...
Friday, September 01, 2023

Chronic Illness Tracking: Symptoms, Treatments, Exertion & How I Feel

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For over 21 years now, I have used a simple system to track important aspects of my chronic illnesses at the end of each day: how I felt, my...
Thursday, August 10, 2023

New Research & Resources on ME/CFS and Long-COVID

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I currently have 18 tabs open on my laptop browser, and most of them are new research on ME/CFS, long-COVID, Lyme disease, and related topic...
Thursday, July 20, 2023

Chronic Illness Vlog 7-16-23: Yeast Overgrowth, Heat, and Best Friends!

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My chronic illness vlogs provide an honest view of my life with ME/CFS and Lyme disease, with all its ups and downs! Last week, I was strugg...
Tuesday, March 28, 2023

Quick Chronic Illness Vlog: Great News x 2! Plus Nature.

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I didn't record a chronic illness vlog last week, with video clips from my entire week, but on Monday (yesterday), I decided to record a...
2 comments:
Thursday, March 09, 2023

Pacing & Management Guides for ME/CFS and Long-COVID

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#MEAction is a great advocacy organization for ME/CFS and Long-COVID that offers a wide range of support and services for patients. One of t...
2 comments:
Friday, February 10, 2023

Extensive Evidence That GET & CBT Are Harmful to ME/CFS and Long-COVID Patients

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That headline should be nothing new to the large and growing population of patients with ME/CFS (myalgic encephalomyelitis / chronic fatigue...
2 comments:
Wednesday, September 07, 2022

Chronic Illness Vlog: Crashed! Why?

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My weekly vlog about life with chronic illness (especially ME/CFS, orthostatic intolerance, and Lyme disease) from last week is available no...
Wednesday, August 17, 2022

Chronic Illness Vlog - A Week in My Life

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Now that life is settling back into "normal" for us after July's craziness, I was able to put together another vlog. A vlog is...
Monday, August 08, 2022

Chronic Illness Vlog - July

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Hi, all! Life has been hectic recently, but I wanted to let you know that I tried something new for my YouTube channel . I was inspired by P...
Thursday, April 28, 2022

New Video: Measuring Limits with Heart Rate Monitor & Step Counter

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I just posted a new video today, all about Measuring Limits in ME/CFS and long-COVID, Using a Heart Rate Monitor and Step Counter . You can ...
Friday, April 08, 2022

Counting Steps: Another Way to Measure My Limits

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I finally have some cautiously optimistic news to report, after three long months of post-COVID/worsened ME/CFS hell: I've had some good...
2 comments:
Wednesday, August 04, 2021

Weekly Inspiration: A Plan B Day

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One of the chapters in my book, Finding a New Normal: Living Your Best Life with Chronic Illness , in the section on Daily Living , is calle...
Wednesday, March 31, 2021

How To Nap

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NOTE: I also made a video on How to Nap , if you prefer to watch rather than read. For many of us with ME/CFS (myalgic encephalomyelitis or ...
2 comments:
Friday, January 29, 2021

My Progress in 2020 and Goals for 2021

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It's time for my annual New Year's post, summarizing some of the progress (or lack of!) I made last year and my new objectives and ...