I thoroughly enjoyed my day today, a day that would be considered very ordinary to most people. Other than my afternoon nap, it was simply normal. After the past two difficult months, normal was very nice.
I went into my son's third grade classroom this morning to participate in their Breakfast Buddies program. It was the first time I've been able to help out in Craig's class this year. What a thrill!
Jamie was home sick today, but so were some of his friends. This may actually be a garden-variety cold. This afternoon, I took him to the doctor for his annual physical. He's now 5' 3" - no longer any doubt that he's passed me up!
The most amazing thing about today was that I was able to interact with other people in such a normal way. I didn't notice a single CFIDS symptom all day, so I felt well enough to chat with the other parents in Craig's class and trade pleasantries with the receptionist at the doctor's office. That kind of ordinary interaction with other people is what I miss most.
All in all, a very normal, nice day.
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Sue,
ReplyDeleteIt's great to hear how well you're doing. How do you feel about the Valcyte? How long have you been on it now?
Fogggygyrl
Hi Sue,
ReplyDeleteYeah, normal is nice isn't it? I think that all anyone with CFS wants is their life back to the way it was. To feel normal again. I am happy that you have started to reach this goal.
I have been blogging about my own experiences of CFS for nearly a month now. When I started I thought I was doing something new and unique - how wrong I was! Since then I have found a number of people relating their experiences with CFS / ME and have been following their progress. It is somewhat of a relief to realise that I am not the only one who is going through this - strangely comforting. It is also interesting to note that despite sharing a common illness, the bloggers are at different stages of life, in different countries and are taking different approaches to getting their lives back.
Despite only reading these blogs for a few weeks, I feel as if I am starting to get to know the authors and there is almost a hidden community here.
So, for this reason, I thought I would introduce myself.
Best wishes,
David
Welcome to the blogging world, David! I felt exactly as you do when I started my CFIDS blog about a year ago. Isn't it amazing to discover this hidden world of people with CFIDS just like you all over the globe? This virtual community has been a huge help to me this past year. Knowing there are others out there who understand helps to reduce the isolation. I'll be sure to check out your new blog!
ReplyDeleteSue