Last night, I was flipping through our little town weekly newspaper. I got to the editorial page and was surprised to see the headline"CFS Misunderstood, Debilitating Disease" at the top of a long letter to the editor.
"Hey, this is great! Our newspaper printed something about CFIDS!" I said to my husband. Then I moved my eyes down the column and saw my own name at the end of it! I was completely perplexed because I hadn't written a letter to the paper, and I didn't even remember writing these particular words (that's brain fog, for you). Then, I realized it was one of the letters I'd sent through the CFIDS Association's Action Center earlier this week. That's why I didn't recognize the writing - the Association wrote most of it, except for the two paragraphs I added about how CFIDS affects us.
I was so excited that they printed the letter, in its entirety! It took up a third of the page and was set off in an outlined box. Isn't that cool? Plus, it was nice to learn I'm not completely losing my mind and forgetting what I wrote!
It's not too late - you can do the same. Using the action center only takes a few minutes, and it works. Maybe your local paper will print a letter, too.
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Great job, Sue!
ReplyDeleteWonderful, Sue! The word needs to get out more!!
ReplyDelete-Laura