I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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Monday, September 08, 2008
National Invisible Chronic Illness Awareness Week
This week is National Invisible Chronic Illness Awareness Week. The official website for the awareness week has lots of good articles on coping with illness yourself and helping others.
You can also celebrate this week by helping to educate our leaders about CFS. The CFIDS Grassroots Action Center has 5 action items available this week. Each takes only moments for you to send to your own government representatives.
As for me, I'm still battling symptoms of Lyme disease as well as CFS. I'll post again tomorrow with more details about how I'm doing. I have a Lyme check-up with my doctor tomorrow morning, after being on antibiotics for 1 month.
Just found your site from Lisa's invisible illness blog this morning. Wow - I can't imagine coping with children with CFIDS as well. Big hugs to all of you! I'll bookmark your site and check in from time to time.
ReplyDeleteSue, As if having CFS (and Lyme disease) isn't enough of a challenge, how difficult (both physically and emotionally) to have your little one's have it too!
ReplyDeleteKudos to you for blogging in spite of having so much on your plate. Kerry