Yesterday I wrote about making an effort to rest and recover...yeah, well, things didn't actually go as I planned yesterday!
Our a/c compressor blew and shorted out the power to most of our house at about 5 pm - at the hottest time of day (it was over 90 here yesterday). So, we spent hours scrambling around, trying to get the power back on, calling the a/c repairman and an electrician, in the midst of getting dinner on the table. Fortunately, the oven, stove, and fridge were among the few circuits still operating, but I really regretted choosing a dinner that required a 500 degree oven! (I started it before the power went out).
Well, we finally got the power back on, but the a/c won't be replaced until next week. By evening last night, I was wiped out from the stress and all the extra time on my feet!
I saw my Lyme specialist in NJ today. He's still very optimistic that I can get rid of Lyme completely, since my symptoms cleared - 3 times! - with antibiotics. He just thinks I need to stay on longer. The general rule of thumb is to stay on abx for 4-6 weeks after all symptoms have disappeared, but he thinks for me, it will have to be 2-3 months. At this point, that probably means at least another 4-5 months of antibiotics for me.
I was exhausted when I got back from NJ (took a nap in the cool basement when I got home!), but I actually sort of enjoy my trips up there. I know that sounds strange, and it is tiring for me, but there's something about road trips that I find really relaxing. I supply the car with a great audio book, snacks, my water bottle, and V-8 (for the sodium), and once I'm on the road, I don't have to worry about anything else. The drive up the Jersey Turnpike is pretty easy in the middle of the day - just set the cruise control and go - and there are no other pressures to worry about, nothing else I could or should be doing, so I can just relax and enjoy my book.
So, all in all, not a bad day (though it's very hot in the house now!), and I'm pleased with the optimistic prognosis on my Lyme.
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Yay!
ReplyDeleteIt sounds like you can beat the lyme with a longer course of antibiotics. That's great news from your doctor.
ReplyDeleteI hope you get the air conditioner fixed soon.
Your trips to the LLMD do sound relaxing.
Terri
This is such good news, Sue. Gives us all hope!!!
ReplyDeleteSorry to hear about your A/C....hope your heat wave is gone now and you can open windows and get a breeze!
Well, I think we all know about those "best laid plans" :) I'm so delighted to hear your positive prognosis ... try to rest up now.
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