Remember I recently posted about author Anne Ursu? Well, she was quoted in a New York Times article yesterday about the new CFS research. It's a great article, except for the inane comments from Reeves at the CDC - makes me want to reach through the computer and strangle him!
Jamie went back to school this morning, in time for his PSAT - hurray! Craig was starting to feel bad last night, but then I discovered he skipped all his meds yesterday (I slept in because I was so sick). Hopefully, he'll be OK now. I'm a little better - still very low stamina but anything is better than yesterday.
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Good article Sue, thanks for sharing it.....CDC....good grief, do they ever get tired of being god of the medicine universe? Must be exhausting to have the only answers!
ReplyDeleteGlad to hear you and yours are doing better.
Hi Sue,
ReplyDeleteThanks for sharing this New York Times article. I hadn't seen this one! Good article - except they could've left out the "psychological" references!
I'm glad you and Jamie are doing better. Jessica took the PSAT today too!
Laura
Thanks for posting the article Sue! I'm glad that Jamie made it in time for his PSAT! I'm glad to hear you are feeling a tiny bit better.
ReplyDeleteWishing you a quick recovery...
Terri
Hi Sue, I'm glad to see you are improving, let's hope it continues.
ReplyDeleteThanks for this interesting article. I actually think he's right to advise caution. It seems hopeful on the face of it, but until I get a letter inviting me for a blood test I'm going to (try) and keep a balance view.
Something that does annoy me though is when is mental illness going to be destigmatised? Imagine going to the docs with depression and being told to 'think' your way out of it because it was all in your head?
So why do people with any illness that is difficult to diagnose feel they have to justify themselves?
I'm off on one now! Grrrr.
I agree, Jo!!
ReplyDeleteAnd just FYI...the test for this new virus is already available through a lab in Nevada, and the WPI (clinic that did the research) is already at work on an anti-viral "cocktail" of already-available meds to treat it (similar to current treatments for AIDS). This is one study that actually holds real promise for some results in the near future!
I'll post more when I'm feeling better - still terribly achy with severe sore throat - going to see my doctor today.
Sue
That's great news Sue, I get more hopeful as the days pass and more information comes out.
ReplyDelete