Busy, busy week - sorry I haven't had much time for blogging! The good news is that I'm busy because I've been feeling pretty good AND I have a new writing assignment. The research phase is due tomorrow and is very time-consuming. The bad news is that Jamie has been home sick since Tuesday with a sinus infection and strep throat. He's been on antibiotics for 2 days now but is still crashed.
Anyway, I just wanted to tell you about this great Webinar that is going on TODAY at noon, Eastern time, sponsored by the CFIDS Association: Going With the Flow - Blood Flow, That Is. It's going to cover Orthostatic Intolerance and the latest research on how reduced blood flow affects people with CFS. I had planned to participate, but I know I won't have time today. It should be good.
You have to sign up in advance, so if you're interested, register for the webinar here. Sorry for the late notice. If anyone attends, let me know how it was!
Also, iGive is running a great promotion...register for iGive and visit 1store through iGive before noon today (Central time), and they'll donate $1 to the CFIDS Association (or whatever charity you choose when you sign up). You don't even have to purchase anything - just visit a store (all the major online stores are available through iGive). iGive is a great organization, and this is a really good deal, so if you're not registered yet, use this link to sign up before noon today!
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Thanks for the heads up on the Webinar. I'll try to catch it. And congratulations on the new writing assignment!
ReplyDeleteSo glad you are on the up and up. Hope Jamie improves soon. Now, remember to pace yourself. . . .
ReplyDeleteI've been hearing a lot about OI lately but I'm still pretty confused by it all. Good luck and congrats with your new writing assignment!
ReplyDeleteMy OI really floors me after a blood test, even though they take a relatively small amount.. with low blood volume and OI a little really drains me. I drank tons of V8 before and after the draw, which seems to help a fair bit, but still, it's the next day and I feel the loss of blood volume as weakness and fatigue. Anybody else have this problem? I haven't really found that doctors acknowledge it as a real issue.
ReplyDeleteYup, giving blood is tough for everyone with OI. I do the same as you - guzzle the V-8 = and that helps me, but yours may be more severe. What makes it even worse is that often those of us with CFS needs lots of different blood tests, so they take a lot of blood at once. Consider asking your doctor to separate your tests onto two different lab slips, so they won't have to take as much at once - or you may prefer to get it all over at once.
ReplyDeleteIn any case, it takes a couple of days for the human body to make more blood, even with lots of fluid and salt.
Low blood volume in people with CFS is well-documented. E-mail me if you want a good reference document to share with your doctor.
Sue