The U.S. Department of Health and Human Services is hosting another Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting this week, Tuesday through Thursday, in Washington, DC. I had hoped to go, but I'm on my own with the kids this week, so I can't risk the almost-certain crash that would likely result.
Fortunately, there's an alternative for those of us who can't manage a trip to DC - the entire 3-day meeting will be broadcast live through the internet - tune in at this webpage. Of particular interest is tomorrow's agenda - for the first time ever, the CFSAC is starting with a Science Day - a day filled with informative presentations from some of CFS's top doctors and researchers (including one on XMRV). Check out the all-star line-up on the agenda.
So, I plan to tune in for much as I can tomorrow (working around nap time, of course) and parts of the next two days, as well (especially the public comment periods). A friend of mine is attending and giving public testimony; she's one of our local CFS group and has two teen sons with severe CFS. I'm sorry I couldn't accompany her to the meeting, but the videocast seems like the next best thing!
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Thanks for letting us know. I'll try and watch some of it. I've got a lot of doc stuff this week so I will probably miss a lot of it. Please post anything that is particularly interesting. Thanks!
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