- Wall Street Journal's Health Blog reports on a new paper by XMRV expert Ila Singh that provides guidelines to researchers on how to properly plan studies in order to use the methods necessary to detect XMRV in blood samples. Let's hope the researchers all listen!
- The Journal of the American Medical Association's recent newsletter includes a detailed article on XMRV and CFS. Nothing really new reported here, but it is significant that such an article appeared in JAMA because it's the most widely-read medical journal in the world. Get the word out!
- Highlights of the recent CFSAC meeting in Washington - this article focuses on the meeting itself, on Days 2 and 3, rather than on the Science Day presentations on Day 1 (which I still plan to summarize for you!)
- Laura Hillenbrand's newest book, Unbroken, is scheduled for release on November 16. Read all about it at this website, along with a long list of scheduled interviews and appearances (I hope she's able to handle all of those!). Many of the events and publications scheduled will include author overviews, so hopefully, this will also be good PR for ME/CFS - there are some biggies listed here!
- Videos from the September 2010 Conference for Healthcare Providers and Patients, sponsored by OFFER (Organization for Fatigue and Fibromyalgia Education and Research) are now available online. The list of speakers and presentations is impressive - all the major players in ME/CFS treatment and research!
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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