- A new documentary about ME/CFS, called Invisible, is being released tomorrow in Vermont; the director/producer has CFS. This is the first I'd heard of this one - I'm interested to see it. I also highly recommend another award-winning CFS documentary, I Remember Me (see link below).
- An update from the Wall Street Journal's Health Blog on the new, large-scale study to test CFS patients for XMRV. What's new and exciting about this study is that it is a cooperative study between WPI and FDA/NIH (who have both previously found XMRV and related viruses) and the CDC (who has not). They are agreeing on using the same selection criteria, the same handling and storage requirements, and the same testing methods. Hurray!
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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