Hurray! A friend just e-mailed me a link to Dr. Rowe's OI article, that I mentioned in all my previous posts on OI. This link is a downloadable pdf file, and the article is even more up-to-date than the one I have that I've been e-mailing.
I strongly urge you to download this article and read the whole thing. It's written in easy-to-understand layman's terms and explains everything you need to know about OI - what it is, how to diagnose it, treatments, salt intake, everything!
Many of the symptoms we associate with CFS actually come from OI (CFS causes autonomic nervous system dysfunction which causes OI), so treating it can really help, whether you stick to just dietary changes or want to try various medications. Share this article with your doctor. Good luck!
P.S. Thanks, Denise!!!
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
It is so awesome having our little network! I'm so glad we can help each other out like this.
ReplyDeleteThanks Sue and Denise. I grabbed it!
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