Jamie took the SAT (college board test) today for the first time. You won't believe what he saw in the Vocabulary section...a sentence about CFS!!
He said it was something to the effect of, "People with Chronic Fatigue Syndrome were angry when the doctor said it was psychosomatic, that it was all in their heads, rather than a physical ailment." (not the exact words but something similar).
Isn't that amazing? We've hit the big time! He said he felt like shouting out loud! Several of his friends mentioned it to him after the test, too.
Does this mean our illness is finally, officially mainstream?
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
I hope for you guys that it finally is getting mainstream. That certainly is not the case in Belgium... Despite the fact that we have a huge social security system and health insurance, we don't get reimbursed for all the CFS-tests, 'cause it's is considered to be psychosomatic. It really is frustrating, isn't it!?
ReplyDeleteWow! That is amazing!!
ReplyDeleteWow! Very cool. Hope he did well on the test.
ReplyDeleteNo s&*t! That is so cool!
ReplyDeleteI would wager someone posing the question knew someone with the disease.
ReplyDeleteYes, this is truly the big time!
At least the next generation will now know about CFS and the patients' plight with the psychosomatic viewpoint, and that can only be a good thing.
Thanks, Sue, this was heartening.
I hope it's finally mainstream. I too have CFS and it's frustrating what ppl tell you to do to get "cured". I pray that your son did well on the SAT.
ReplyDeleteSo glad everyone else was as excited about this as Jamie and I were!
ReplyDeleteThanks for all the kind wishes for Jamie. He thinks he did well on the test. We know from his experience with the PSAT that he does well when he's feeling well and horrible when he's even mildly crashed. Fortunately, yesterday was a good day :) plus the great thing about the SAT is that you can take it as many times as you want and add your best scores from each section. Also, Jamie had special accommodations for the test - as many breaks as he needed, plus snacks/drinks, so he feels pretty good about it.
Sue
I'm glad Jamie felt good about how he did. I posted this on the FB page for the book -- CFS on the SAT!
ReplyDeleteI'm not sure what to think! That is definitely something I never thought I would see/hear!
ReplyDeleteVery cool!
ReplyDeleteAnd, I'm glad Jamie felt well for the SAT. That's great that he got accomodations for it. If you remember, we tried but couldn't get accomodations for the ACT for Jessica.
That is indeed wonderful news! So glad you shared it with us!!
ReplyDelete