A friend passed this request along to me:
"The SF Chronicle published an article on the protest in front of DHHS at the CFSAC meeting. Aside from that, the reporter on the case, Erin Allday, is interested specifically in writing an article about children with CFS in the Bay Area.
If you/ your child is interested or if you know someone who might be interested, you can e-mail me and I will pass your information along. Just click on my profile and use the "E-mail Me" link.
So, if you know of a child or teen with ME/CFS in the San Francisco Bay area who would be willing to be interviewed (or whose parents would be willing to be interviewed), please follow up. We can use all the publicity we can get!
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
do you have a link for the SF Chronicle article?
ReplyDeleteyou might try asking on healkick.com if there is anyone. it's a site specifically designed for young people with neuro-immune diseases
found the article: http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2011/05/25/BANA1JL1AH.DTL
ReplyDeleteHi, David,
ReplyDeleteHere is the link to the SF Chronicle article:
http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2011/05/25/BANA1JL1AH.DTL
Please comment on it. More comments means more press coverage in the future.