The US Department of Health and Human Services has announced dates
for the "spring" meeting. The details are reprinted below. They are
not yet accepting requests for public comment; I will let you know as
soon as they do. If you plan to participate in the CFSAC meeting in any
way (in person, by phone, by submitting a DVD), please contact Denise
at Speak Up About ME by e-mail at speakupaboutme at gmail dot com.
"Chronic Fatigue Spring Meeting -
The Chronic Fatigue Syndrome Advisory Committee (CFSAC), 2012 spring
meeting will be held on Wednesday, June 13, 2012 from 9:00 a.m. until
5:00 p.m. EST and Thursday, June 14, 2012 from 9:00 a.m. until 5:00 p.m.
EST.
The meeting will be held at the U.S. Department of Health and Human
Services, Hubert Humphrey Building, 200 Independence Avenue, S.W., Room
800, Washington, D.C. 20201. For directions please visit
http://www.hhs.gov/about/hhhmap.html.
The meeting will be webcast live and available by audio
(listening-only). Additional information and the CFSAC agenda will be
posted to the CFSAC website by June 4, 2012.”
http://www.hhs.gov/advcomcfs/advcomcfs-cfsacmeeting.html"
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Thank you for passing on the information!
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