For those who are interested in hearing more on the subject of safe exercise for ME/CFS patients, Jennie Spotila has once again written an excellent and comprehensive post on her blog, Occupy CFS. In this post, she compares the exercise guidelines recently presented by Dr. Nancy Klimas (and referenced in my last post) against the exercise guidelines suggested by CFS exercise specialists at the Pacific Fatigue Lab, well-nown for their excellent research on exercise and post-exertional crashes in CFS.
By looking at all the information in one place, Jennie has presented an excellent overview of safe exercise for people with ME/CFS.
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
Wow that is a GREAT summary Sue! I feel as if slowly slowly we are getting to a place where guidelines that actually work are not too far away...?! Ever the optimist huh?! thanks for the heads up x
ReplyDeleteI love your optimism, Annie...and I share it!
DeleteHi Sue. I hope you don't mind, I'm going to repost Jennie's article on my blog too. It's just too good NOT to pass on. And I want to have a record of it for myself to come back to later. Thanks for posting it!
ReplyDeleteI agree, Patrick! Jennie is a friend of mine and is an amazing writer (a lawyer in her previous life) - she really has a talent for distilling complex information into understandable bits.
DeleteShare away!