The FDA was very quick to post videos from their recent workshop on Development of Safe and Effective Drug Therapies for CFS and ME (I was a little slow, but they were quick).
If you go to this website, you will see a list of archived videos. They conveniently broke the meeting down into manageable pieces, so you can just watch the parts that are of interest to you or watch them all, one at a time, when you're able to.
I saw some of these live (but not all of them). I highly recommend any of the patient panels - it was so exciting to watch all these people from the FDA listen to what regular ME/CFS patients and clinicians had to say! One of my favorites was Patient Panel #2.
This meeting was ground-breaking! Hope you enjoy peeking in and seeing for yourself.
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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