CFSAC has posted videos from its most recent meeting, held on May 22 - 23, 2013. Here are all the links (copied from an e-mail, so I don't know what the formatting will look like):
CFSAC Spring 2013 Meeting
(I always find the Public Comment periods interesting, and this meeting also included - for the first time - public Q&A sessions)
Welcome & Call to Order - Day 1, May 22, 2013, 9:00 - 10:30 AM
Public Comment on Day 1, 10:45 AM - 1:00 PM.
Approve Prioritized Recommendations List - Day 1, 1:00 - 1:30 PM.
Determination of Medicare Coverage of Test and Treatments - Day 1, 1:30 - 2:30 PM.
Public Question & Answer on Day 1, 2:45 - 3:15 PM.
Committee Discussion and Plans for Day 2, 3:15 -- 5 PM.
Opening Remarks on Day 2, 9:00 - 10:15 AM.
Health Insurance Marketplace - Day 2, 10:15 - 11:00 AM
Public Comment on Day 2, 11:15 AM - 12:15 PM
Public Question and Answer on Day 2, 1:30 - 3:00 PM.
Committee Discussion on Day 2, 3:00 - 3:30 PM.
Committee Discussion (Part #2) on Day 2, 3:30 - 5:00 PM
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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