If you became ill with ME/CFS as a child or teen and are now an adult, the Tymes Trust in the UK would like to hear your story.
They are compiling an anthology of stories from adults who got ME as a child, in order to provide support for sick young people and their parents and to help educate the medical community about the special plight of children with ME.
You can read the details and contact information here.
The more we share our stories with the world, the better the outside world will understand the severity and devastation of this illness, especially on young people...so let your voice be heard and tell your story!
I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
No comments:
Post a Comment